Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary GalaFriday, October 10, 2014 in New York City

VBF 2014 Annual ConferenceSaturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products
 

Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




2nd Annual Walk/Run For Birthmarks A Huge Success


 

Walk Begins
Barbara Rothaupt and Basia Joyce - Event Co-Chairs - begin the registration process
Buddy Booby (VBF's Mascot) and character from Buddy Booby Birthmark Book makes his debut at this event (AJ Palmateer did a great Buddy)
The beginning of the 2010 walk/run


Barbara Rothaupt and Basia Joyce - Event Co-Chairs - begin the registration process


Buddy Booby (VBF's Mascot) and character from Buddy Booby Birthmark Book makes his debut at this event (AJ Palmateer did a great Buddy)


nearly 100 runners lined up for the 5k race
There was plenty of food for the walkers and runners
Team Evan - wins first place - largest team
Nearly 100 runners lined up for the 5k race


There was plenty of food for the walkers and runners


Team Evan - wins first place - largest team


Team Ethan - comes in 2nd place with nearly 30 members
Team Saige - her friends from college came to join the walk
Christine Shannon, Buddy and Dr. Linda
Team Ethan - comes in 2nd place with nearly 30 members


Team Saige - her friends from college came to join the walk


Christine Shannon, Buddy and Dr. Linda



Despite the forecast for rain and possible thunderstorms, the 2nd Annual VBF Walk/Run for Birthmarks was a huge success. The sun came out; the clouds disappeared, except for a brief shower which was followed by a glorious rainbow, and over 300 individuals attended this year’s event. There were almost 100 runners and a little over 200 walkers. Donations are still coming in but this year’s event will top $10,000.

 

Basia Joyce (VBF’s Executive Assistant) once again Co-Chaired the event with Barbara A. Rothaupt, Esq. Both did a fantastic job. There was plenty of food donated, bouncey bounce for the kids along with tumbling tykes. Hot dogs and other snacks were available and a free financial consultation from the main event sponsor: Mirkovic’, Lambert & Teal, a financial advisory practice of Ameriprise Financial Services. Other event sponsors included the Center for Facial Plastic Surgery & University Ear, Nose and Throat of Northeastern New York, Silhouette Eye Studio, SEFCU, the Lia Auto Group, Stewart’s Shops and Price Chopper and Hannaford supermarkets. Erle Daniels and his company “Race With Us” did another great job handling the sanctioned 5k race.

 

Prizes were awarded to the largest walking teams as well as first, second, and third place finishes in all age categories for the 5k race.

 

Buddy Booby (VBF’s Mascot) and the character in the Buddy Booby’s Birthmark Book made his debut at this year’s event. Thanks to AJ Palmateer for wearing the costume and giving life to Buddy !

 

Lastly, this year’s walk/run was dedicated to the memory of Charlotte “Char” Shannon Gallo, VBF’s 1st official volunteer. Chris is the grandmother of Christine Shannon, daughter of VBF President and Founder Dr. Linda (and Chuck Shannon, Char’s son).

 

Join us again next year on Friday, May 13, 2011. Should be a lucky day for us !