Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary GalaFriday, October 10, 2014 in New York City

VBF 2014 Annual ConferenceSaturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products
 

Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Rafael Ortiz, MD, Neuro-endovascular Surgeon
Ask Dr. Ortiz your questions about vascular tumors of the head and neck region, cerebral and spinal arteriovenous malformations, treatment of craniofacial vascular lesions (venous, lymphatic, AVMs, hemangiomas) in adults and children.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




2010 Gala/Conference a Huge Success


Friday evening October 8, 2010 was a beautiful night in NYC for our 2nd Mark of Beauty Gala. The weather was perfect, the music (songs by our own soloists and the cast from Wanda’ s World) was amazing, there were over 220 in attendance and we were able to sponsor a number of families for our next conference due to the net proceeds from the event. Everyone commented that it was an incredible experience. We were also thrilled to announce that we have reached over 50,000 families who have been networked into treatment since 1994.

 

VBF was proud to announce that Dr. Gregory Levitin was honored as our 2010 Physician of the Year at our gala. In addition, our 2010 Service Awards were presented to: Saige Cavayero (VBF Student Rep), Dr. Geronemus’ s staff at the Laser & Skin Surgery Center of NY, Donna and Evan Ducker for their Buddy Booby Read-a-Thon, and Dr. Geronemus was presented with the Buddy Booby Award for his outreach to children and adults with birthmarks all over the world.

 

The Hudson Theatre was once again the host site for this year’ s Mark of Beauty Gala. Our chairs were Marc and Hyleri Katzenberg. Thanks to the Katzenbergs, we had a wonderful auction on line through Charity Buzz, the leading on-line celebrity auction house. Many thanks to the wonderful soloists: Jennie Legary, Christine Shannon with Kristen Melendez on violin, Carleigh Jurofsky (daughter of our PR Director Hyler Katzenberg) and the entire cast and crew from the wonderful off-Broadway production of Wanda’ s World.

 

The following morning we headed to NYU for our annual Vascular Birthmarks Conference. There were over 225 in attendance and we had over 15 presentations from the top medical experts in the field of vascular birthmarks and tumors. After the presentations we head to Dr. Geronemus’ s office where we had over 103 clinic appointments with 4 different medical teams between 1 and 6pm. We also had concurrent specialty sessions with insurance and legal experts, psychotherapists, make up artists, and an orthodontist. Following the conference, the VBF Board of Directors held their annual planning session.

 

Many who attended the conference were in awe at the families who came from all over the world to get an accurate diagnosis and an informal treatment plan. Even the physicians were amazed at how well the conference ran and how we were able to fit in 103 clinic appointments in 5 hours.

 

This has been our lowest year for donations but it has been our highest year for helping families. If you have not decided where to make your 2010 annual donation, please consider VBF because we are making a difference in the lives of families affected by a vascular birthmark or tumor. Your donations will go directly to Sponsor a Family so that they can attend our next conference (2011 in Irvine, California in October). Without the sponsorships, the families could not attend our conference and obtain accurate information and proper medical treatment.. We are the only charity that we know of that actually pays for the food, hotel, conference fee, and clinic appointments for our families through our Sponsor a Family program. Help us to continue to make a difference. You can make your 2010 donation by clicking on the DONATE button at the top of our main page. Thank You and a big thank you to all of our volunteers who made the gala and conference a huge success this year!

 

 

Dr Linda with Hyleri and Marc Katzenberg Gala Chairs
VBF Staff Board Members, Basia, Leslie, Saige and Elysa
Tiffany and Deb Birney at Sponsor a Family Table
Dr Linda with Hyleri and Marc Katzenberg Gala Chairs
VBF Staff Board Members, Basia, Leslie, Saige and Elysa
Tiffany and Deb Birney at Sponsor a Family Table
West Coast Team Erin Miller and Dr. Stuart Nelson
VP Brian Bolinger and West Coast Liaison Peg Nelson
More of the VBF Team: Elysa, Jenny, Tiffany, Saige and Marissa
West Coast Team Erin Miller and Dr. Stuart Nelson

VP Brian Bolinger and West Coast Liaison Peg Nelson
More of the VBF Team: Elysa, Jenny, Tiffany, Saige and Marissa
VBF Ex. Asst. Basia Joyce and her husband Jim Joyce
Glen Ethington and his Grandma our VBF Chapters Director
VBF Friends and Board Members: Cavayero Family
VBF Ex. Asst. Basia Joyce and her husband Jim Joyce

Glen Ethington and his Grandma our VBF Chapters Director
VBF Friends and Board Members: Cavayero Family
Saige receives service award (Dr. Linda with Hyleri and Marc Katzenberg)
Joan receives service award on behalf of NYL&SSC of NY
Evan and Donna Ducker receives service award for Buddy Booby Read-A-Long
Saige receives service award (Dr. Linda with Hyleri and Marc Katzenberg)

Joan receives service award on behalf of NYL&SSC of NY
Evan and Donna Ducker receives service award for Buddy Booby Read-A-Long
VBF 2010 Physician of the Year Dr. Gregory Levitin
Buddy Booby Award Recipient Dr. Roy Geronemus
VBF Photographer Eileen O'Connor with Hyleri Katzenberg, Dr. Linda and Jack Turoff
VBF 2010 Physician of the Year Dr. Gregory Levitin

Buddy Booby Award Recipient Dr. Roy Geronemus
VBF Photographer Eileen O'Connor with Hyleri Katzenberg, Dr. Linda and Jack Turoff
VBF Board Member Jenny Legary
Christine Shannon singing (daughter of Dr. Linda) and Kristen Melendez playing violin (best friend of Christine)
Carleigh Jurofsky (daughter of Hyleri Katzenberg) belts it out
VBF Board Member Jenny Legary
Christine Shannon singing (daughter of Dr. Linda) and Kristen Melendez playing violin (best friend of Christine)
Carleigh Jurofsky (daughter of Hyleri Katzenberg) belts it out
Wandas World Cast singing the finale'
Jared and Kristen (volunteer for our raffle)
Saige postes with the poster she designed for our 2010 Gala
Wandas World Cast singing the finale'
Jared and Kristen (volunteer for our raffle)
Saige poses with the poster she designed for our 2010 Gala
Evan reads Buddy Booby Book at Conference in DayCare
Buddy Booby gets "beaked"
Jim Joyce is DaddyDayCare !
Evan reads Buddy Booby Book at Conference in DayCare
Buddy Booby gets "beaked"
Jim Joyce is DaddyDayCare !