Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

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Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Rafael Ortiz, MD, Neuro-endovascular Surgeon
Ask Dr. Ortiz your questions about vascular tumors of the head and neck region, cerebral and spinal arteriovenous malformations, treatment of craniofacial vascular lesions (venous, lymphatic, AVMs, hemangiomas) in adults and children.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




VBF Launches 3rd Annual Day of Awareness Walk/Run for Birthmarks Challenge


VBF is excited to announce that our 3rd Annual Challenge – Walk/Run for Birthmarks – will be held on Friday, May 13th, 5:00pm, at the Crossings of Colonie, in Colonie, New York. Last year’s event was a huge success with over 300 attendees. We are optimistic that we will succeed that total this year.

 

For the second year in a row we are proud to announce that our 2011 Walk/Run event is sponsored by Mirkovic, Lambert & Teal, A Financial Advisory Practice of Ameriprise Financial Services, Inc. We are also proud to announce that our 2011 Birthmark Champion is Kaylee Rippy, (her grandparents are local and sought help from VBF for her treatment).

 

2011 Walk/Run Birthmark Champion

 

Kaylee Rippy before surgery
Kaylee Rippy after surgery

 

Please join our 5k race, or 1 mile walk teams. You can register on-line by going to the links below. This event is going to be a time of great family fun. We are going to have a bouncy bounce, tumbling tykes, face painting, music, food, and vascular birthmark “Experts” who will be on hand to answer questions for free about the diagnosis and treatment of hemangiomas and vascular malformations.

 

This year we are also adding a “Kids Fun Run” for the children. And, don’t miss out on the free T-Shirts to the first 300 registrants. It’s only $15 per person, $10 per student or teams members with 5 or more, or $30 per family.

 

Another new addition this year is our walk/run JOIN ME page. You can see links below to individuals who have created their own walk/run sponsorship page. If you can’t make our event in person, please sponsor one of our walkers/runners. So far we have VBF President/Founder Dr. Linda Rozell-Shannon who will be walking for Team Christine (her daughter). We also have Basia Joyce, VBF Executive Asst. who will be walking for Team Anna (her daughter) and…..

 

We are hoping for at least 25 “birthmark” teams to walk/run in this year’s event and 10 JOIN ME individuals. If you or a loved one has or had a vascular birthmark, put a team together and join us. Or, we will create a JOIN ME page for you so that you can invite your friends from all over the world to sponsor you in our walk/run event. Please contact Basia Joyce at BasiaJim99@nycap.rr.com to set up your own sponsorship page. This is a great way for you to help us reach this year’s goal of $20,000.

 

The 5k race course is a sanctioned course and certificates will be presented to the standard race category winners. We will also be presenting a certificate to the largest “birthmark” team.

 

Bring your friends, family, office, club, and classmates. Everyone is welcome. If you can’t walk or run, volunteer to work at one of our booths. Please help us to continue to make a positive difference in the lives of families affected by a vascular birthmark. And, if you can’t attend, please sponsor one of our Walk/Run for Birthmarks Challenge JOIN ME individuals listed on the links above. As always, thank you for helping to make a difference for families affected by a vascular birthmark.

 

Hot off the press....VBF Honorary Chairs Frank and Barbara Catalanotto will be attending the VBF 3rd Annual Walk/Run for Birthmarks. Frank retired from the New York Mets in 2010, but he will be on hand at the walk/run to sign autographs (with proceeds to benefit VBF). His wife, Barbara, will be participating in the 5k race.

 

Come join our walk/run and get a chance to meet a pro baseball player and get his autograph. You can also get your picture taken with Frank.

 

VBF is honored to have Frank and Barbara Catalanotto as our Honorary Chairs. Their daughter, Morgan, had a hemangioma on her nose and they were referred to VBF for support and treatment. Once they contacted VBF, they never left. That was 10 years ago and they have been critical in raising awareness and helping raise the funds needed to continue our work.

 

Don't miss out on this incredible opportunity. Walk/Run with us and also get a change to meet a pro baseball player ! ! ! !

 

Sign up today ! ! !

 

To register, go to https://birthmark.ejoinme.org/MyEvents/2011VBFAnnualChallenge/Registrati...

 

To download and mail your registration form, go to http://birthmark.org/pdf/2011WalkRunRegForm.pdf

 


Dr. Linda (VBF President/Founder) JOIN ME Page

https://birthmark.ejoinme.org/MyEvents/2011VBFAnnualChallenge/SignUpPage...


Basia Joyce (VBF Exec. Asst) JOIN ME Page

https://birthmark.ejoinme.org/MyEvents/2011VBFAnnualChallenge/SignUpPage...


Team Lockwood JOIN ME Page

https://birthmark.ejoinme.org/MyEvents/2011VBFAnnualChallenge/SignUpPage...


Sicolo Family JOIN ME Page

https://birthmark.ejoinme.org/MyEvents/2011VBFAnnualChallenge/SignUpPage...


Olga Bachuk JOIN ME Page

https://birthmark.ejoinme.org/?tabid=275599&joinme=5168


Danielle and Trey Rippy JOIN ME Page

https://birthmark.ejoinme.org/MyEvents/2011VBFAnnualChallenge/SignUpPage...


Team Ethan Watson JOIN ME Page

https://birthmark.ejoinme.org/MyEvents/2011VBFAnnualChallenge/SignUpPage...


Team Chase JOIN ME Page

https://birthmark.ejoinme.org/MyEvents/2011VBFAnnualChallenge/SignUpPage...


Greg and Melanie Falco JOIN ME Page

https://birthmark.ejoinme.org/MyEvents/2011VBFAnnualChallenge/SignUpPage...