Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
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1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder
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Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




REGISTER NOW: VBF 2011 Conference - Irvine, Ca.


The Vascular Birthmark Foundation
along with the

Present the 2011 Port Wine Stain and Vascular Birthmarks Conference
with Dr. J. Stuart Nelson and Dr. Martin Mihm Jr, Conference Directors

 

VBF is very excited to announce that despite the economy the Port Wine Stain and Vascular Birthmarks Conference will be held once again in Irvine, California on Friday, November 4th and Saturday, November 5th. This conference will take place at the Beckman Laser Institute in Irvine, and at the Island Hotel minutes away in Newport Beach, California. Families should fly into the John Wayne Airport (closest to the event). There is no shuttle to the hotel, but a bus or cab is only $20. LAX airport is another option, and flights may be cheaper to that airport, but it is a little farther and families will be responsible for getting to the hotel from the airport. For those of you flying into LAX you can take a shuttle to the John Wayne Airport from LAX and from the John Wayne Airport you can get another shuttle to the Island Hotel. There is a fee for the shuttle but it is the best way to get to the hotel if you are not renting a car or driving.

 

The Beckman Laser Institute, and Syneron, Inc. will be sponsors of this year’s conference.

 

This year, the first 50 families that register will have meals included and FREE lodging for Friday night at The Island Hotel, www.theislandhotel.com. In addition, the conference fee is only $100 per family and this includes conference attendance and clinic appointment. Anyone who cannot pay the clinic or conference fee can request that the fees be waived. A $25 deposit is required for each family registering for the conference and this fee cannot be waived. This deposit is non-refundable.

 

Families attending will hear the latest on diagnosis and treatment from vascular birthmarks experts. The conference itinerary can be viewed at the link below.

 

There will be four clinic teams this year. The hemangioma team, the malformations of the head and neck area team, the malformations of the extremities, and the PWS team.

 

Participating families will receive an expert diagnosis and treatment plan that they would otherwise have a difficult time receiving. The philosophy of VBF is that families don’t ask to have a child born with a vascular birthmark and so we try to make it as affordable as possible, even providing a free night lodging on Friday evening. We raise money all year long to pay for families to attend our conference. We are the only birthmark charity group in the world that provides no cost clinic and conference participation to families who cannot afford and we are the only group that pays for lodging.

 

During these tough economic times, VBF is working harder to raise money so that families with children with vascular birthmarks can still attend and get an accurate treatment plan. We are very excited about research that will be presented that will help people with port wine stains have a better treatment result.

 

Break out sessions will occur on Friday evening so that families have time to ask the experts questions about birthmarks and special sessions run all day on Saturday to help families with insurance issues, psychotherapy sessions, make up sessions, and family support.

 

Free daycare is also provided. If you have any questions regarding this year’s conference please contact VBF Executive Assistant: Basia Joyce at (518) 495-3938, basiajim99@nycap.rr.com

 

To register by postal mail, please click here (pdf).

 

To register online, please click here

 

The conference itinerary can be found here