Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary GalaFriday, October 10, 2014 in New York City

VBF 2014 Annual ConferenceSaturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products
 

Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




The Vascular Birthmarks Foundation 2012 Conference



The Vascular Birthmarks Foundation

Announces the 2012 Vascular Birthmarks Conference

with Co-Directors Dr. Roy Geronemus, Dr. Gregory Levitin, and Dr. Robert Rosen

at Lenox Hill Hospital 100 East 77th Street, NY, NY.




It’s that time again – registration is now open for the VBF Annual Vascular Birthmarks Conference. We are very excited to announce this year’s conference will be held in New York City on Saturday, November 10, 2012. This year the conference is one full day which will include the conference lectures and a clinic with world renowned vascular birthmark experts.



This year’s conference and clinic will be held at the Lenox Hill Hospital 130 East 77 th Street on Floors 1 and 2 . We only have 50 FREE HOTEL ROOMS for ONE NIGHT (Friday evening) for the first 50 families who register. Once the rooms are gone, we will continue to accept registrations for the conference but you will need to secure your own lodging. You may be able to find discounted rooms at Hotels.com or Expedia.com or other such discounted sites. NOTE: The 50 FREE ROOMS are for families who do not live in the immediate NYC region.

As of 11/2/12 all conference rooms are filled. However, you may still attend the conference for free.

 

Anyone coming to the 2012 conference in NYC from OUTSIDE of New York State who would like to find out if you qualify for a free laser treatment, and who does not have insurance, please email Joan Agnetti, Chief Operating Officer, Laser & Skin Surgery Center of New York. Her phone is 212-686-7306. Only conference attendees will be given this opportunity. If you are attending the conference and have insurance and would like a treatment from Dr. Geronemus and his staff you may also try to have that arranged for Friday, while you are in New York City attending the conference.


This year we will require a credit card for everyone who registers, even if you get a free room and we waive all fees. If you do not show and you have a free room, your credit card will be charged $298 (cost to VBF). So, please make sure you are attending when you register. We will give a 100% refund if you cancel 30 days prior to the conference (by October 10, 2012) or a 50% refund if you cancel by October 22nd. There will be no refund after October 28th. Lodging will be at the Affinia Dumont or the Affinia Shelburne). Note: Because we have had to change the location of the conference and clinic, attendees will now have to get a subway, bus, or cab to the Lenox Hill Hospital on 77th Street.


There is a $100 conference/clinic fee per family. This fee entitles the family to admission to the conference, a free clinic appointment and breakfast and lunch, daycare (if needed) and attendance to special sessions (make-up, psychotherapy, support, dental and insurance services). If there is a financial hardship, fees will be waived but you must contact VBF Ex. Asst. Basia Joyce to apply for a scholarship. Her email is BasiaJim99@nycap.rr.com. If you are only attending the conference or only attending a clinic session, the fee is still only $100. We urge all families to attend the conference and to sign up for a very valuable clinic session.


The conference check-in is at 7:30am and conference sessions begin at 8:30am. There will be three meeting rooms this year with presentations concerning hemangiomas, port wine stains, vascular malformations, venous malformations, lymphatic malformations, Klippel Trenaunay Syndrome and Sturge Weber Syndrome. There will be other special sessions which will be announced once we receive confirmation. Lunch is provided for all attendees from 12:30-1:00pm.


Clinic sessions will be from 1:00 to 6:00 pm at the Lenox Hill Hospital. Breakfast and Lunch will also be right at the Hospital so there is no need to leave once you arrive for check in. There will be four clinic teams this year: Team 1: Hemangiomas and Malformations of the Head and Neck (Leader: Dr. Levitin); Team 2: PWS (Leaders: Dr. Nelson, Dr. Geronemus, Dr. Mihm); Team 3: Sturge Weber Syndrome (Leader: Dr. Comi); Team 4: KTS and Malformations of the Extremities (Dr. Rosen and Dr. Delfanian). Other experts will be on each team and will be available for meeting with families throughout the day.


Special sessions will be held during the day for make up, psychotherapy, insurance issues, and support. See links to registration form on-line or you can download and print and mail in the form. We need at least one clear photo (emailed to Basia Joyce at BasiaJim99@nycap.rr.com upon registration showing the birthmark for each patient so that we can insure that the patient is scheduled with the appropriate clinic team.


A tentative speaker’s itinerary can be found at the link indicated for
http://birthmark.org/pdf/2012itin.doc


VBF 2012 Conference Clinic Teams

 

To register for the conference on line, please go to the link below
https://birthmark.ejoinme.org/MyPages/ConferenceRegistrationPage/tabid/9...


To register for the conference by mail, please go to the link below
http://birthmark.org/pdf/2012ConferenceRegistration.pdf