Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
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1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

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Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Rafael Ortiz, MD, Neuro-endovascular Surgeon
Ask Dr. Ortiz your questions about vascular tumors of the head and neck region, cerebral and spinal arteriovenous malformations, treatment of craniofacial vascular lesions (venous, lymphatic, AVMs, hemangiomas) in adults and children.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




VBF’s Conference in Moscow A Huge Success


June 7th and 8th, 2012 will go down in VBF history as one of our hugest milestones. A team of 6 physicians plus VBF President and Founder, Dr. Linda traveled to Moscow for VBF’s First International Compassion Trip.

 

Dr. Linda noted that over a year ago she was frustrated at the thought of bringing one child at a time to the USA for treatment from countries where physicians were not trained to treat vascular birthmarks. Each surgery and trip to the US could cost upwards of $20,000-$30,000. Dr. Linda envisioned using that same amount of money to bring a team of doctors from the USA to each country that needed training. The VBF experts would lecture for one full day, operate for free for one full day, and conduct a clinic. It was a win/win/win idea and Moscow was the first stop on our international journey to bring the treatment and training to countries in need.

 

The VBF joined with the Pediatric Oncology and Hamematology Research Institute NN Blokhin Russian Cancer Research Center in Moscow to make this compassion trip a reality. Since the hospital was already conducting an annual conference on pediatric tumors why not add the vascular birthmarks team to the agenda? It was a perfect fit. The invitation came and our Experts were more than happy to volunteer their time and services. VBF was also able to receive a grant for funding of travel expenses and the Research Institute in Moscow covered meals and lodging.

 

This is a historical event for VBF and for the joint relationship between USA physicians and Moscow physicians. This trip had another purpose and that was to launch a routine vascular birthmarks clinic. Olga Bachuk, the VBF Russia Executive Director coordinated patients for the clinic. Dr. Tatyana Belysheva, the Medical Director of VBF Russia and also the physician liaison between Moscow and the USA, worked with Olga and the medical team at the Institute. She has also been receiving free laser training by VBF laser experts Dr. Roy Geronemus and Dr. Stuart Nelson.

 

The VBF International Team, referred to as the VBF iTEAM consisted of Dr. Linda Rozell-Shannon who presented at the conference on the Psycho-social Impact of Having an Infant with a Hemangioma, she also presented before a team of Psychologists who are working with the families and she did a presentation before families helping them to understand what a vascular birthmark is and what they can expect from treatment. Dr. Martin Mihm, VBF’s Research Director and Co-Medical Director initiated the morning session with a presentation on the Histopathology of Benign Versus Malignant Lesions. He also spent Friday presenting on the latest research concerning melanoma to Moscow’s leading melanoma experts. Dr. J. Stuart Nelson, VBF’s Co-Medical Director presented an Overview of Laser Therapy for Treating Vascular Lesions and Non-Vascular Lesions. He also spent Friday with Dr. Geronemus performing laser treatments. Dr. Nelson actually spent 3 days performing free laser treating while in Moscow. In total, over 100 patients were treated for free in Moscow. Dr. Roy Geronemus presented on the Treatment of Infantile Lesions with the Laser and he also spent Friday treating patients with the laser. Dr. Belysheva, VBF Russia’s Medical Director presented on the Situation in Russia regarding the treatment of vascular lesions in children. In the afternoon session Dr. Gregory Levitin spoke on Hemangiomas and Malformations – Diagnosis and Management. He also preformed free surgeries on Friday. Following Dr. Levitin, Dr. Anton Hasso presented on the role of Diagnosis and Interventional Radiology in the treatment of Vascular Anomalies and he saw patients in an informal clinic on Friday. Dr. Robert Rosen finished with a combined presentation on Sclerotherapy and Embolization for Treating Pediatric Tumors and Interventional Management of Trunk and Extremity Vascular Malformations. He also saw patients on Friday and performed treatments for free.

 

As a result of this first international compassion trip, over 100 children and adults were treated for free. In addition, Dr. Linda is working with a team in Moscow to establish a free humanitarian clinic that will do free laser treatments every 6 weeks on a Saturday morning. Dr. Linda is also working with Dr. Gregory Levitin and the VBF Russia team to bring a little girl with extensive hemangioma to New York City where Dr. Levitin will operate on her for free.

 

VBF would like to thank M. I. Davydov, the Director of NN Blokhin Russian Cancer Research Center for hosting our event. We would also like to thank Dr. M. D. Aliev, Dr. Vladimir Poljakov, and Dr. Marina Doroshenko for welcoming us and making us a part of their exceptional program.

 

A special thanks to our two translators, Olga and Tanya who will be working with our current VBF Russia team to grown, expand, and fund humanitarian efforts in Moscow for children and adults suffering from a vascular birthmark.

 

Despite the economy and the trend toward less and less donations, VBF has embarked on its greatest mission and that is to bring vascular birthmark education and treatment to the countries that have not been able to help their children or adults affected by these lesions. We are thrilled to announce we will be heading to India in 2013 and to China in 2014.

 

To all of our donors, because of your generosity, our doors are still open and we were able to treat 100 children for free in Moscow. Thank you and if you would like to give to the VBF iTEAM and their international outreach, just click on our DONATE button and select VBF International.

 

See the program

 

Thank you.