
Ask the VBF Experts
Dr. Stuart Nelson, VBF Co-Medical Director and
International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment
of Port Wine Stains.
Dr. Gregory Levitin, Hemangioma
and Malformations Surgeon, NYC and LA
Dr. Levitin will
answer your questions regarding the surgical treatment of all vascular birthmarks
and tumors.
Dr. Robert Rosen, Vascular Lesions of Arms and
Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs,
Dr. Rosen welcomes your questions.
Dr. Roy Geronemus, NYC and International Laser
Specialist
If you have a question or concern about laser treatments in general, contact
Dr. Geronemus.
Dr. Aaron Fay, Hemangioma and Malformation Eye
Surgeon
Dr. Fay will answer your questions about orbital birthmarks.
Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning
family advocacy, treatment questions, or physician referral.
Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks
and tumors.
Dr. Darren Orbach, Pediatric Neurointerventionalist
for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!
Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding
to your questions concerning this syndrome.
Dr. Alex Berenstein, Malformations
and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.
Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.
Dr. Barry Zide, NYC Hemangioma and Malformations
Surgeon
If you have a question or concern about hemangioma and vascular malformation
treatment in general, contact Dr. Zide.
Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network
treatment to Basia.
Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.
Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.
Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations
with sclerotherapy or embollization can be sent to Dr. Orhan Konez.
Dr. Jason Mouzakes, Airway Surgeon
Email Dr. Mouzakes with questions regarding airway hemangiomas and other vascular
lesions in the airway (throat area).
Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular
lesions.
Dr. Calil, Lymphatic Malformation
Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.
Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental
Specialist
A trained developmental specialist and is on the board of VBF. Send questions
concerning hemangiomas and this topic to Elissa.
Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.
Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment
of vascular birthmarks in the military.
Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding
a prescription drug, please ask Doc Helen Figge.
Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject
of vascular birthmarks.
Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.
Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port
wine stains and this topic to Leslie.
Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.
Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com),
your questions about make-up.
Eileen O'Connor, Adult Living with PWS
Laurie Moore, Make Up Expert
from Colortration
Laurie Moore, from www.colortration.com
will answer makeup related concerns.
Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.
What Our Families Are Saying About Us
"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown
Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

Dr. Linda noted that over a year ago she was frustrated at the thought of bringing one child at a time to the USA for treatment from countries where physicians were not trained to treat vascular birthmarks. Each surgery and trip to the US could cost upwards of $20,000-$30,000. Dr. Linda envisioned using that same amount of money to bring a team of doctors from the USA to each country that needed training. The VBF experts would lecture for one full day, operate for free for one full day, and conduct a clinic. It was a win/win/win idea and Moscow was the first stop on our international journey to bring the treatment and training to countries in need.
This is a historical event for VBF and for the joint relationship between USA physicians and Moscow physicians. This trip had another purpose and that was to launch a routine vascular birthmarks clinic. Olga Bachuk, the VBF Russia Executive Director coordinated patients for the clinic. Dr. Tatyana Belysheva, the Medical Director of VBF Russia and also the physician liaison between Moscow and the USA, worked with Olga and the medical team at the Institute. She has also been receiving free laser training by VBF laser experts Dr. Roy Geronemus and Dr. Stuart Nelson.
The VBF International Team, referred to as the VBF iTEAM consisted of Dr. Linda Rozell-Shannon who presented at the conference on the Psycho-social Impact of Having an Infant with a Hemangioma, she also presented before a team of Psychologists who are working with the families and she did a presentation before families helping them to understand what a vascular birthmark is and what they can expect from treatment. Dr. Martin Mihm, VBF’s Research Director and Co-Medical Director initiated the morning session with a presentation on the Histopathology of Benign Versus Malignant Lesions. He also spent Friday presenting on the latest research concerning melanoma to Moscow’s leading melanoma experts. Dr. J. Stuart Nelson, VBF’s Co-Medical Director presented an Overview of Laser Therapy for Treating Vascular Lesions and Non-Vascular Lesions. He also spent Friday with Dr. Geronemus performing laser treatments. Dr. Nelson actually spent 3 days performing free laser treating while in Moscow. In total, over 100 patients were treated for free in Moscow. Dr. Roy Geronemus presented on the Treatment of Infantile Lesions with the Laser and he also spent Friday treating patients with the laser. Dr. Belysheva, VBF Russia’s Medical Director presented on the Situation in Russia regarding the treatment of vascular lesions in children. In the afternoon session Dr. Gregory Levitin spoke on Hemangiomas and Malformations – Diagnosis and Management. He also preformed free surgeries on Friday. Following Dr. Levitin, Dr. Anton Hasso presented on the role of Diagnosis and Interventional Radiology in the treatment of Vascular Anomalies and he saw patients in an informal clinic on Friday. Dr. Robert Rosen finished with a combined presentation on Sclerotherapy and Embolization for Treating Pediatric Tumors and Interventional Management of Trunk and Extremity Vascular Malformations. He also saw patients on Friday and performed treatments for free.
As a result of this first international compassion trip, over 100 children and adults were treated for free. In addition, Dr. Linda is working with a team in Moscow to establish a free humanitarian clinic that will do free laser treatments every 6 weeks on a Saturday morning. Dr. Linda is also working with Dr. Gregory Levitin and the VBF Russia team to bring a little girl with extensive hemangioma to New York City where Dr. Levitin will operate on her for free.
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