Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
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1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder
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Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




Dr. Suen and Dr. Richter


Dr. James Suen
UAMS

4301 West Markham Street
Little Rock, Arkansas 72205
501-686-8000

Dr. James Y. Suen is a Professor and Chairman of the Department of Otolaryngology - Head and Neck Surgery at UAMS.

 

Dr. Suen received his medical degree from UAMS in 1966. He completed residencies in general surgery and otolaryngology at San Francisco General Hospital and UAMS. A Captain in the United States Air Force, he completed a fellowship in Otolaryngic Pathology at the Armed Forces' Institute of Pathology in Washington, D.C., and was an advanced senior fellow in head and neck surgery at M.D. Anderson Cancer Center in Houston. He is certified by the American Board of Otolaryngology. Dr. Suen is a fellow in the American Academy of Otolaryngologists and the American Head and Neck Society of which he is past president.

 

His primary surgical interests include head and neck cancer, congenital vascular lesions of the head and neck, and diseases of the larynx. He sees teens and adults with AVMs from all over the world.

 

He is the author and editor of six medical textbooks, including Cancer of the Head and Neck, which is used worldwide by medical schools. In 1995, he was selected by Good Housekeeping as one of the top 400 cancer specialists in the United States and, since that time, he has been listed in all editions as one of the Best Doctors in America.

 

Dr. Gresham T. Richter

ARKANSAS CHILDREN'S HOSPITAL RESEARCH INSTITUTE

13 Children's Way • Little Rock, Arkansas 72202-3591
Research Institute (501) 364-7373 Main Hospital (501) 364-1100

 


Prior to joining ACHRI in 2008, Dr. Richter completed complete a 2-year fellowship in pediatric otolaryngology at Cincinnati Children’s Hospital where he learned complex pediatric airway management and reconstruction, general pediatric otolaryngology, vascular anomalies, and pediatric otology. Dr. Richter completed his residency training in otolaryngology at UAMS in 2006. Dr. Richter has multiple research interests, including 1) pathophysiology and management of laryngomalacia; 2) airway remodeling and mucosal wound healing; 3) pathogenesis and prevention of subglottic stenosis; 4) identifying genetic and molecular determinants of vascular anomalies; 5) exploring potential molecular pharmacotherapeutic targets for vascular anomalies; and 6) role of chemotherapy in management of vascular malformations and problematic hemangiomas.

 

Recently Dr. Richter has acquired and established laboratory space at ACHRI to conduct research. Laboratory equipment and maintenance has been supported by a prior foundation dedicated to the investigation of vascular anomalies. He is now poised to begin the first step in translating potential therapies from bench to bedside for hemangiomas and vascular malformations. These activities include developing animal models for preliminary investigation and evaluation of potential therapies and establishing structure in their application. As a head and neck surgeon with the Vascular Anomalies Center at UAMS and ACH, Dr. Richter is collaborating with the group’s physicians and ancillary staff to discover cures for simple, problematic, and aggressive vascular anomalies. He will conduct similar work identifying new approaches to treating subglottic stenosis.