Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary GalaFriday, October 10, 2014 in New York City

VBF 2014 Annual ConferenceSaturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products
 

Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Rafael Ortiz, MD, Neuro-endovascular Surgeon
Ask Dr. Ortiz your questions about vascular tumors of the head and neck region, cerebral and spinal arteriovenous malformations, treatment of craniofacial vascular lesions (venous, lymphatic, AVMs, hemangiomas) in adults and children.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




VBF Launches 5th Annual Day of Awareness Walk/Run for Birthmarks Challenge


VBF is excited to announce that our 5th Annual Challenge – Walk/Run for Birthmarks – will be held on Friday, May 10th, 5:00pm, at the Niskayuna Soccer Complex, Zenner Road, Niskayuna, NY. We are very excited about our new location this year. The Niskayuna Soccer Complex is a beautiful area with an extremely large parking lot, concession stand and access to the scenic Mohawk-Hudson Bike- Hike Trail, where our race and walk will occur.

 

We are proud to announce that our 2013 Birthmark Champion is Alec Frazier, a local boy whose parents sought help from VBF for his treatment.

 

Alec before his treatment   Alec after his treatment

Alec before treatments and Alec after several treatments

 

Please join our 5k race, or 1 mile walk teams. You can register on-line by going to the links below. This event is going to be a time of great family fun. We are going to have a bouncy bounce, Tumbling Tykes, face painting, music by DJ Krazy Keith and Coccadotts cupcake van will be there!

 

We are also having a “Kids Fun Run” for the children. It’s only $15 per person, $10 per student or teams members of 5 or more, or $30 per family. And, don’t miss out on the free T-Shirts to the first 300 registrants.

 

You can also create your own walk/run JOIN ME page. See the link below to create a webpage for your own personal fundraiser for this event. If you can’t make our event in person, please sponsor one of our walkers/runners. So far we have VBF President/Founder Dr. Linda Rozell-Shannon who will be walking for Team Christine (her daughter). We also have Basia Joyce, VBF Executive Asst. who will be walking for Team Anna (her daughter). Each created their own JOIN ME page. You can click on their links below if you want to donate to one of their teams.

 

We are hoping for at least 25 “birthmark” teams to walk/run in this year’s event and 10 JOIN ME individuals. If you or a loved one has or had a vascular birthmark, put a team together and join us. Or, create a JOIN ME page so that you can invite your friends from all over the world to sponsor you in our walk/run event. You can create a personal fundraising page, where people can donate through your page or a team fundraising page. With a team fundraising page, you can have people sign up to walk or run on your team and their names will appear on your page and/or you can have people donate through your team page. You can tell your own story, set your own goal and you can also include a photo if you wish. The page only supports one jpeg. If you would like to use more than one photo (ie: before and after), you must combine them into one jpeg. If you are not able to do this yourself, you may email the photos to our web mistress, Missy at birthmark.org@gmail.com. She will email the combined photo back to you. NOTE: Missy can not access your JOIN ME page and can not download the photo for you. If you have questions regarding creating your JOIN ME page, please contact Basia Joyce at basiajim99@nycap.rr.com. This is a great way for you to help us reach this year’s goal of $20,000.

 

To register online to attend this event, click here.

 

To register by mail, click here to download a printable registration form.

 

To create your own JOIN ME page for this event, please click here.

 

Certificates will be presented to the standard race category winners. We will also be presenting a certificate to the largest “birthmark” team.

 

Bring your friends, family, office, club, and classmates. Everyone is welcome. If you can’t walk or run, volunteer to work at one of our booths. Please help us to continue to make a positive difference in the lives of families affected by a vascular birthmark. And, if you can’t attend, please sponsor one of our Walk/Run for Birthmarks Challenge JOIN ME individuals listed in the links below. As always, thank you for helping to make a difference for families affected by a vascular birthmark.

 

Dr. Linda (VBF President/Founder) Join Me Page

https://birthmark.ejoinme.org/MyEvents/2013VBFsFifthAnnualChallenge/Pers...

 

Basia Joyce (VBF Exec. Asst) Join Me Page

https://birthmark.ejoinme.org/MyEvents/2013VBFsFifthAnnualChallenge/Pers...

 

Kyla Graziane (VBF Parent Representative) Join Me Page

https://birthmark.ejoinme.org/MyEvents/2013VBFsFifthAnnualChallenge/Pers...

 

Alec Frazier, VBF's 2013 Birthmark Champion's Join Me page

https://birthmark.ejoinme.org/MyEvents/2013VBFsFifthAnnualChallenge/Pers...