Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary GalaFriday, October 10, 2014 in New York City

VBF 2014 Annual ConferenceSaturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products
 

Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Rafael Ortiz, MD, Neuro-endovascular Surgeon
Ask Dr. Ortiz your questions about vascular tumors of the head and neck region, cerebral and spinal arteriovenous malformations, treatment of craniofacial vascular lesions (venous, lymphatic, AVMs, hemangiomas) in adults and children.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




2013 Vascular Birthmarks Conference in Irvine, CA a huge success!!!


VBF’s 2013 conference was our largest attended conference to date. A total of nearly 300 people attended and our team of physician experts held 127 clinic appointments to provide a diagnosis and treatment plan to our participants and to network them into treatment. These same physician experts lectured about the current research and treatment options for vascular birthmarks, tumors and related syndromes such as Klippel- Trenaunay Syndrome and Sturge-Weber Syndrome.

 

We would like to thank the all of our volunteers, the VBF Board, all Beckman staff members, and all of the doctors who donated their time to make this event possible. A special thanks to our sponsors, Beckman Laser Institute, Terumo, UC Irvine Medical Center, ASLMS, Beckman Laser Institute Foundation, Syneron, and Leslie and Dennis Rebelo. Thanks also for generous donations from Lauri Firstenberg, Whole Foods, Land O’Lakes, Inc and Dr. Eric Bernstein.

 

VBF looks forward to another successful conference next year in 2014 in honor of our anniversary! We hope to see you there!

 

Photo from 2013 Conference

Photo from 2013 Conference

Photo from 2013 Conference

Sydney Robbins with Mom Erin Robbins

The Gobbi Family

Jaela Smith with Mom, Jennifer Smith

Photo from 2013 Conference

Photo from 2013 Conference

Photo from 2013 Conference

Nicholas Alexiou with Dad, John Alexiou

Addisyn Ross with Mom, Krissta Ross

The Wilson Family

Photo from 2013 Conference

Photo from 2013 Conference

Photo from 2013 Conference

Dr. Stuart Nelson, Dr. Linda Rozell-Shannon and Deb Birnie, 2013 Service Award Recipient

Dr. Linda Rozell-Shannon and VBF Board Member and 2013 Service Award Recipient, Andria Gottsabend

Dr. Linda Rozell-Shannon with Dr. Francine Blei, recipient of VBF's Physician of the Year Award

Photo from 2013 Conference

Photo from 2013 Conference

Photo from 2013 Conference

Dr. Stuart Nelson and Leslie and Dennis Rebelo and family, recipients of the Patricia Beckman Excellence in Philanthropy Award

Dr. Stuart Nelson and Dr. Linda Rozell-Shannon with Dr. Wenbin Tan, recipient of the Michael W. Berns Achievement Award

Dr. Linda Rozell-Shannon with Sarina Patel, one of the 2013 recipients of the Dr. Martin Mihm Scholarship

Photo from 2013 Conference

Photo from 2013 Conference

Photo from 2013 Conference

Brynn Stehling with Mom, Danielle Stehling

Dr. Kami Delfanian

Dr. Anne Comi

Photo from 2013 Conference

Photo from 2013 Conference

Photo from 2013 Conference

Dr. Ramani Ramchandran

Dr. Kami Delfanian, Dr. Gregory Levitin and Dr. Anne Comi

Deborah Birnie, Beckman Laser Institute, Leslie Graff, VBF's Psychologist and Erin Miller, Beckman Laser Institute and VBF Board Member

Photo from 2013 Conference

Photo from 2013 Conference

Photo from 2013 Conference

The BLI Gang - Erin Miller, Jeff Andrews and Deb Birnie

Elijah Camarena

Joshua Bruckner in daycare

Photo from 2013 Conference

Photo from 2013 Conference

Photo from 2013 Conference

Jaela Smith had her face painted in the daycare room

Dr. Anton Hasso

Angelia Fiorani

Photo from 2013 Conference

Photo from 2013 Conference

Photo from 2013 Conference

Dr. Robert Rosen

Dr. Aaron Fay

Dr. Stuart Neslon, Dr. Linda Rozell-Shannon and Dr. Carrol Fenn

Photo from 2013 Conference

Photo from 2013 Conference

Photo from 2013 Conference

Leslie Graff, VBF's Psychologist

Dr. Linda Rozell-Shannon and the discussion panel

Dr. Milton Waner and Dr. Francine Blei

Photo from 2013 Conference

Photo from 2013 Conference

Photo from 2013 Conference

Dr. Joseph Edmonds and Dr. Kami Delfanian

Dr. Gregory Levitin

Dr. Anne Comi and Dr. Gregory Levitin

Photo from 2013 Conference

Photo from 2013 Conference

 

Dr. Aaron Fay and Dr. Milton Waner

Dr. Robert Rosen