Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary GalaFriday, October 10, 2014 in New York City

VBF 2014 Annual ConferenceSaturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products
 

Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Rafael Ortiz, MD, Neuro-endovascular Surgeon
Ask Dr. Ortiz your questions about vascular tumors of the head and neck region, cerebral and spinal arteriovenous malformations, treatment of craniofacial vascular lesions (venous, lymphatic, AVMs, hemangiomas) in adults and children.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




Vascular Birthmarks Foundation 20th Anniversary Conference


Online Conference Registration link:
https://birthmark.ejoinme.org/MyPages/ConferenceRegistrationPage/tabid/9...

Mail in pdf conference reg form
http://birthmark.org/pdf/2014ConfRegForm.pdf

Physician Registration- please read below for details.

Conference Itinerary:
http://birthmark.org/node/309

PLEASE READ BELOW FOR DETAILS ON CONFERENCE, FREE HOTEL ROOMS, FREE LASER TREATMENTS, FINANCIAL WAIVERS, CLINIC SESSIONS, SPECIAL SESSIONS, PHYSICIAN REGISTRATION, ETC.

The Vascular Birthmarks Foundation is thrilled to announce that October 2014 marks our 20th Anniversary of assisting families affected by a vascular birthmark or associated syndrome. Throughout 2014 we will be celebrating our accomplishments such as over 3,000,000 monthly visits on websites with chapters on 6 continents, 75,000 networked into treatment, over 500 families provided free lodging while seeking a medical opinion or treatment, over 400 conference scholarships awarded, over 200 Day of Awareness events, over 100 insurance appeals successfully challenged, 15 conferences, 12 new programs (including our Ask/Accept Anti Bullying campaign), 10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 2 International Missions Trips with over 300 treated by our international. We have exceeded all of our expectations!

On Saturday, October 11, 2014, we will be hosting our 2014 Annual Vascular Birthmarks Foundation Conference at the Lenox Hill Hospital, 130 East 77th Street, New York City. The cost to attend will be $100 per family (fee will be waived for families who cannot afford to pay the conference fee). Breakfast and lunch will also be provided, in addition to many special sessions for affected families. You won’t want to miss this conference as we will have experts from all over the world.

VBF is pleased to announce that the Chairs for our 2014 Conference will be Dr. Robert Rosen, Dr. Roy Geronemus and Dr. Gregory Levitin.

Any physician wishing to attend the conference can attend for a $100 donation to VBF through our general donation box on the front page of our website (birthmark.org/node/7). Please indicate in the note or comment box, “Physician attending conference”.

We only have 50 FREE HOTEL ROOMS for ONE NIGHT (Friday evening) for the first 50 families who register. Once the rooms are gone, we will continue to accept registrations for the conference but you will need to secure your own lodging. You may be able to find discounted rooms at Hotels.com or Expedia.com or other such discounted sites.

NOTE: The 50 FREE ROOMS are for families who do not live in the immediate NYC region and are in financial need. You must live outside the NYC Metropolitan region to qualify for a free room. There is a 4 person per hotel room limit (no more than 2 adults per room!)

This year we will require a credit card for everyone who registers, even if you get a free hotel room and all conference fees are waived. If you do not show and you have a free room, your credit card will be charged $299 (cost to VBF) for the hotel room. So, please make sure you are attending when you register. We will give a 100% refund if you cancel 30 days prior to the conference (by September 10, 2014). There will be no refund after September 10, 2014. Lodging will be at the Millenium Broadway Hotel, 145 W. 44th St., New York City, or the Holiday Inn - Midtown - 57th Street, New York City.

There is a $100 conference/clinic fee per family. This fee entitles the family to admission to the conference, a free clinic appointment, breakfast and lunch, daycare (if needed) and attendance at special sessions (make-up, psychotherapy, support, or legal-insurance services). If you are only attending the conference or only attending a clinic session, the fee is still only $100. We urge all families to attend the conference and to sign up for a very valuable clinic session. If there is a financial hardship, fees will be waived. There is a “discount code” on the online registration form. By using this code you are stating that you are unable to pay the conference fee due to a financial hardship. The code is WAIVER (all capital letters). For questions please contact Basia Joyce at Basia@birthmark.org.

The conference begins with registration and continental breakfast at 7:15 AM. We will have conference speakers from 8:00-12:00 PM, presenting on the most recent information on the diagnosis and treatment of vascular birthmarks and syndromes. Boxed lunches will be available between 12:30 and 1:00. Clinic sessions and other special sessions will run between 1:00 and 6:00 PM. There be 7 different clinic teams, comprised of world renowned medical experts in the field of vascular birthmarks, providing an informal diagnosis and treatment plan.

Clinic Teams:

Proposed Clinic Teams for 2014 VBF 20th Anniversary Conference/Clinic:

Team 1: Hemangiomas & Head & Neck Lesions (Dr. Milton Waner, Dr. Aaron Fay, Dr. Stavros Tombris, Dr. Teresa O)

Team 2: Vascular Malformations of the Head & Neck (Dr. Alex Berenstein, Dr. Rafael Ortiz, Dr. Gregory Levitin, Dr. Barry Zide)

Team 3: Extremity & Internal Lesions (Dr. Robert Rosen, Dr. Anton Hasso, Dr. Joseph Rozell)

Team 4: PWS Adult (Dr. Stuart Nelson, Dr. Martin Mihm, Dr. Paula North)

Team 5: PWS Infants & Children (Dr. Roy Geronemus, Dr. Ignacio Sanchez-Carpentiero)

Team 6: SWS & PHACE Syndromes (Dr. Anne Comi, Dr. Steven Kane & Dr. Francine Blei)

Team 7: KTS (Dr. Kami Delfanian, Dr. Laura Findeiss)

Other experts will be on each team and will be available for meeting with families throughout the day.

Special sessions will be held for make-up, psychotherapy, insurance issues, and support.

IMPORTANT: We need at least one clear birthmark photo for each patient so that we can insure that the patient is put on the correct team for evaluation. Please email this photo to Basia Joyce at Basia@birthmark.org when you register.

VBF is very excited to announce that once again Dr. Roy Geronemus, of the Laser & Skin Surgery Center of New York, and one of the leading laser experts in the world, will be offering free laser treatments. These treatments will not be offered to anyone who is currently a patient in Dr. Geronmus practice or in a practice in New York City. The free laser treatments are for patients who are traveling from out of state or out of the country. In order to determine if you qualify for a free laser treatment, please email your photo, name, and contact information to Joan Agnetti, Chief Operating Officer, Laser & Skin Surgery Center of New York, email: mail@laserskinsurgery.com phone: 212-686-7306. You MUST be attending the conference in order to qualify for the free laser treatment!

VBF will be holding their 20th Anniversary Gala celebration the night before the conference on October 10th at the Hudson Theater in Manhattan. If you are interested to learn more about the gala, please visit: http://birthmark.org/node/310