Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary GalaFriday, October 10, 2014 in New York City

VBF 2014 Annual ConferenceSaturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products
 

Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




Vascular Birthmarks Foundation 20th Anniversary Conference and Gala


The Vascular Birthmark Foundation
20th Anniversary “Mark of Beauty” Gala
and
2014 Vascular Birthmarks Conference
Friday & Saturday, October 10-11, 2014

 

The Vascular Birthmarks Foundation is thrilled to announce that October 2014 marks our 20th Anniversary of assisting families affected by a vascular birthmark or associated syndrome. Throughout 2014 we will be celebrating our accomplishments such as over 3,000,000 monthly visits on websites with chapters on 6 continents, 75,000 networked into treatment, over 500 families provided free lodging while seeking a medical opinion or treatment, over 400 conference scholarships awarded, over 200 Day of Awareness events, over 100 insurance appeals successfully challenged, 15 conferences, 12 new programs (including our Ask/Accept Anti Bullying campaign), 10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 2 International Missions Trips with over 300 treated by our international. We have exceeded all of our expectations!

 

On Friday, October 10, 2014, we will be hosting our 20th Anniversary “Mark of Beauty” Gala at the Hudson Theatre located at 145 West 44th Street, New York City, from 7pm until 10pm. Cost to attend will be $150 per person or $2,000 for a table of 10 (this includes 5 raffle tickets per person which are worth $20 each raffle ticket, or a value of $100 per person).

 

This year's celebrity performer will be renowned comedian Mike Stankiewicz. Mike has a port wine stain vascular birthmark. He will share his light hearted humor and also reflect on his own experiences about living with a vascular birthmark. VBF is thrilled to have Mike as the celebrity performer for our 20th Anniversary celebration. Read about Mike and check out his YouTube video.

 

On Saturday, October 11, 2014, we will be hosting our 2014 Annual Vascular Birthmarks Foundation Conference at the Lenox Hill Hospital, 130 East 77th Street, New York City. The most recent information on the diagnosis and treatment of vascular birthmarks and syndromes will be presented at this conference. There will also be 7 different clinic teams, comprised of world reknown medical experts in the field of vascular birthmarks, providing an informal diagnosis and treatment plan. The cost to attend will be $100 per family (fee will be waived for families who cannot afford to pay the conference fee). In addition, we will be providing 50 free hotel rooms for Friday night in NYC for the first 50 families who register for the conference. Breakfast and lunch will also be provided, in addition to many special sessions for affected families. You won’t want to miss this conference as we will have experts from all over the world.

 

Note: A more detailed description for the gala and conference appear below along with a link to register for either or both events.

 

The 20th Anniversary “Mark of Beauty” Gala:

 

The Chairs for our 20th Anniversary “Mark of Beauty” gala are Dr.& Mrs. Robert Rosen and Frank and Barbara Catalanotto.

 

Dr. Rosen chairs the Lenox Hospital Vascular Anomalies Program and Co-hosts the VBF biennial conference in NYC. He is also very instrumental in the VBF international outreach program.

 

Frank and Barbara Catalanotto are the Honorary Chairs of the Vascular Birthmarks Foundation. Their daughter, Morgan, was diagnosed with a hemangioma. This diagnosis led them to the VBF. Frank is a former professional baseball player, and he and his wife Barbara are the leading fund raisers for VBF.

 

This year's celebrity performer will be renowned comedian Mike Stankiewicz. Mike has a port wine stain vascular birthmark. He will share his light hearted humor and also reflect on his own experiences about living with a vascular birthmark. VBF is thrilled to have Mike as the celebrity performer for our 20th Anniversary celebration. Read about Mike and check out his YouTube video.

 

As noted above, the cost to attend this year’s “Mark of Beauty” gala is $150 per person, or $2,000 per table of 10 (with 5 free raffle tickets per person). Attire is dinner/cocktail. We had a sell-out crowd in 2008 and in 2010 and expect to sell out again this year, so please register early. We are thrilled to announce that in addition to some “surprise” entertainment, we will have comedian Mike Stankiewicz (he has a port wine stain vascular birthmark). There will be many commemorative events at the gala, to honor our 20 years of accomplishments. If you are coming, bring tissue – there will not be a dry eye in the house!

 

Dr. Martin Mihm, Jr. will be honored as 20th Anniversary Physician of the year.

 

Note: To register by phone, with a credit card, contact Basia Joyce, VBF Executive Assistant at 518-495-3938. For any questions concerning the conference or gala, email: Basia@birthmark.org

 

To register for the gala, click here:
https://birthmark.ejoinme.org/MyEvents/HomePage/tabid/502952/Default.aspx

 

Note: You can register on line or download and print the PDF and mail it to VBF, PO Box 106, Latham, NY 12110.

 

The Conference:

 

This year’s conference will be held at the Lenox Hill Hospital, 130 East 77th Street, New York, New York, on Saturday, October 11th from 8am to 12pm for conference speakers and then from 1 to 6pm for the free clinic sessions.

 

The Chairs for our 2014 Conference will be Dr. Robert Rosen, Dr. Roy Geronemus and Dr. Gregory Levitin.

 

We only have 50 FREE HOTEL ROOMS for ONE NIGHT (Friday evening) for the first 50 families who register. Once the rooms are gone, we will continue to accept registrations for the conference but you will need to secure your own lodging. You may be able to find discounted rooms at Hotels.com or Expedia.com or other such discounted sites.

 

NOTE: The 50 FREE ROOMS are for families who do not live in the immediate NYC region and are in financial need. You must live outside the NYC Metropolitan region to qualify for a free room. There is a 4 person per hotel room limit (no more than 2 adults per room)!

This year we will require a credit card for everyone who registers, even if you get a free hotel room and all conference fees are waived. If you do not show and you have a free room, your credit card will be charged $299 (cost to VBF) for the hotel room. So, please make sure you are attending when you register. We will give a 100% refund if you cancel 30 days prior to the conference (by September 10, 2014). There will be no refund after September 10, 2014. Lodging will be at the Millenium Broadway Hotel, 145 W. 44th St., New York City, or the Holiday Inn - Midtown - 57th Street, New York City.

 

There is a $100 conference/clinic fee per family. This fee entitles the family to admission to the conference, a free clinic appointment, breakfast and lunch, daycare (if needed) and attendance at special sessions (make-up, psychotherapy, support, or legal-insurance services). If there is a financial hardship, fees will be waived, but you must contact VBF Ex. Asst. Basia Joyce to apply for the waiver of the $100 fee. Her email is Basia@birthmark.org. If you are only attending the conference or only attending a clinic session, the fee is still only $100. We urge all families to attend the conference and to sign up for a very valuable clinic session.

 

The conference check-in is at 7:30am and conference sessions begin at 8:00am. Lunch is provided for all attendees from 12:30-1:00pm.

 

A conference schedule will be available by February 1, 2014.

 

Clinic sessions will be from 1:00 to 6:00 pm. There will be seven clinic teams this year: Team 1: Hemangiomas & Head & Neck Lesions (Dr. Milton Waner, Dr. Aaron Fay, Dr. Stavros Tombris); Team 2: Vascular Malformations of the Head & Neck (Dr. Gregory Levitin & Dr. Barry Zide); Team 3: Extremity & Internal Lesions (Dr. Robert Rosen, Dr. Laura Findeiss, Dr. Anton Hasso; Team 4: PWS Adult (Dr. Stuart Nelson, Dr. Martin Mihm); Team 5: PWS Infants & Children (Dr. Roy Geronemus); Team 5: SWS & PHACE Syndromes (Dr. Anne Comi & Dr. Francine Blei); Team 7: KTS (Dr. Kami Delfanian & Dr. Linda Rozell-Shannon). Other experts will be on each team and will be available for meeting with families throughout the day.

 

Special sessions will be held during the day for make-up, psychotherapy, insurance issues, and support.
See links to registration form on-line or you can download, print and mail in the form. We need at least one clear photo for each patient so that we can insure that the patient is put on the correct team for evaluation. Please email this photo to Basia Joyce at Basia@birthmark.org when you register.

 

VBF is very excited to announce that once again Dr. Roy Geronemus, of the Laser & Skin Surgery Center of New York, and one of the leading laser experts in the world, will be offering free laser treatments. These treatments will not be offered to anyone who is currently a patient in Dr. Geronmus practice or in a practice in New York City. The free laser treatments are for patients who are traveling from out of state or out of the country. In order to determine if you qualify for a free laser treatment, please email your photo, name, and contact information to Joan Agnetti, Chief Operating Officer, Laser & Skin Surgery Center of New York, email: mail@laserskinsurgery.com phone: 212-686-7306.

 

To register early for the conference and/or gala, click here:

 

Note: You can register on line or download and print the PDF and mail it to VBF, PO Box 106, Latham, NY 12110.

 

Conference Registration link:
https://birthmark.ejoinme.org/MyPages/ConferenceRegistrationPage/tabid/9...

 

Gala Ticket purchase, gala sponsorship and conference sponsorship link:
https://birthmark.ejoinme.org/MyEvents/HomePage/tabid/502952/Default.aspx

 

Mail in pdf conference reg form
http://birthmark.org/pdf/2014ConfRegForm.pdf

 

Mail in pdf gala ticket purchase form
http://birthmark.org/pdf/2014GalaRegForm.pdf

 

 

Both Gala/Conference
https://birthmark.ejoinme.org/MyEvents/HomePage/tabid/502952/Default.aspx