Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder
Donate to VBF    Shop VBF Products
 

Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




Vascular Birthmarks Foundation 20th Anniversary Family Fun Day and Community Walk, June 8th, 2014


VBF is pleased to announce our Family Fun Day and Community Walk, which is being held in honor of our 20th anniversary. This event will occur on Sunday, June 8th from 10:00 AM – 1:00 PM at the Niskayuna Soccer Complex, Zenner Road, Niskayuna, NY. Please join us for a fun filled day. We will have a community walk, bounce houses and Tumbling Tykes will be there for the little ones organizing various activities, including face painting. In addition, we will have DJ Krazy Keith, celebrity MC, Joe Condon (B95.5), games and a prize wheel operated and donated by the Tri-City Valley Cats organization, a TCBY yogurt station, food, a hole-in-one competition and much more!

 

VBF is very excited to announce that that Retired Hall of Fame NFL football player, Joe DeLamielleure is coming to our Family Fun Day in Niskayuna! He will be there between 10 and 11 am and will sign autographs for kids. Joe played for the Buffalo Bills and Cleveland Browns. He is a 6 time pro bowl selection, 6 time all-pro, NFL 1970’s All-Decades Team.

 

 

We are proud to announce that our 2014 Birthmark Champion is Gabriella (“Gabbi”) Thomas, a local girl whose parents found help through VBF. Steve and Becky Thomas were out to dinner with Gabbi, then 8 months old, when they were approached by friends of Dr. Linda’s who told them about VBF and provided them with Dr. Linda’s phone number. Shortly afterwards Gabbi was networked into treatment and had surgery to remove a large portion of her hemangioma, located over her left eye. Gabbi has also received three laser treatments and has two more to go.

 

Gabbi before surgery
and laser treatments
Gabbi after surgery
and three laser treatments


We are very excited to announce our helicopter golf ball drop!!! You do not have to be present to participate. Purchase golf balls for a chance to win two round-trip coach class American Airlines tickets. Purchase one golf ball for $10, three golf balls for $20, ten golf balls for $50, or twenty five golf balls for $100. Numbered golf balls will be dropped from a helicopter prior to the start of the event at a local golf course and the one that lands in the hole or the one closest to the hole wins the airline tickets! (Please see below for prize details and restrictions.)

 

Bring a team of walkers for our community walk and also enjoy food and games! Name the team after someone in your family that has/had a vascular birthmark (ie: Team Sally). Each year we have many teams of walkers named after children with vascular birthmarks. Bring your family and friends to walk on your team. Individuals signing up to walk on a team receive a discount.

 

Register to attend the event as a family (up to 5 members) and receive a discount. Fees to attend are $15 per individual, $30 per family of up to 5 members, $10 per walking team member, $10 student fee.

 

Free t-shirts for the first 300 to register!!!

 

Create a personal fundraising (“JOIN ME”) page so that you can invite your friends and family from all over the world to sponsor you in our walk. Donors to this personal fundraising page will also receive a chance to win two round-trip coach class American Airlines tickets in our helicopter golf ball drop, which will be occurring at this event.  They will receive one golf ball for a $10 donation, three golf balls for $20, ten golf balls for $50, or twenty five golf balls for a $100 donation.  You can create a personal fundraising page or a team fundraising page. With a team fundraising page, you can have people sign up to walk or run on your team and their names will appear on your page and/or you can have people donate through your team page. You can tell your own vascular birthmark story, set your own goal and you can also include a photo or video if you wish. The page only supports one jpeg photo. If you would like to use more than one photo (ie: before and after), you must combine them into one jpeg. If you are not able to do this yourself, you may email the photos to our web mistress, Missy at birthmark.org@gmail.com. She will email the combined photo back to you. NOTE: Missy can not access your JOIN ME page and can not download the photo for you. If you have questions regarding creating your JOIN ME page, please contact Basia Joyce at Basia@birthmark.org. This is a great way for you to help us reach this year’s goal of $20,000. To create your personal fundraising page for this event, please click here.

 

To register to attend this event and/or purchase golf balls, please click here.

 

To download and print a registration form to be mailed in, please click here

 

To purchase golf balls ONLY, please click here.

 

For more information on this event, please contact Basia Joyce at Basia@birthmark.org or at 518-495-3938.

 

Helicopter Golf Ball Drop Prize Details:
This package includes round-trip coach class service for two from any American Airlines destination in the 48 contiguous United States to anywhere American Airlines flies in the 48 contiguous United States or Canada, subject to availability. A minimum of three nights or a Saturday night stay is required. AAdvantage miles may be earned in accordance with the terms and conditions of the AAdvantage frequent flyer program. Miles cannot be utilized to upgrade these coach class certificates to a higher level of service.

 

The following blackout dates apply:

2014: Jul 3-6; Nov 21-26; Nov 29-Dec 1; Dec 26-31.
2015: TBD.

 

Airfare will expire in one year (June 8, 2015). Any airport departure taxes, fees or fuel surcharges (if charged) are the responsibility of the winner.

 

Flight must be booked a minimum of 60 days in advance. Reservations are subject to availability. Certificates cannot be replaced if lost, stolen or destroyed. All purchases are non-refundable. Packages cannot be resold. Suggested retail value (up to $3,744) is calculated using tariff air rates. Ground transportation is not included.