Welcome to VBF!

Ask the VBF Experts

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

Dr. Aaron Fay, Hemangioma and Malformations Eye Surgeon
Dr. Aaron Fay will answer questions concerning eye problems and birthmarks.

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

Brian Bolinger, Esq. Director VBF Advocacy Alliance
This alliance is being formed to coordinate legislative, legal, and insurance related issues regarding the diagnosis and treatment of vascular birthmarks and tumors.

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian

Dr. Gary Giangola, KTS Treatment Specialist
If you have questions concerning the surgical treatment of KTS or other vascular lesions of the arms, legs, or trunk, contact Dr Giangola.

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

Dr. Thomas Serena, Wound Care Specialist
Please send Dr. Serena your questions regarding wound care for an ulcerated hemangioma or other vascular birthmark, tumor, or syndrome that requires wound care.

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

Dr. Jason Mouzakes, Airway Surgeon
Email Dr. Mouzakes with questions regarding airway hemangiomas and other vascular lesions in the airway (throat area).

Dr. Steven Fishman, Internal Lesions Surgeon

Ask Dr. Fishman your questions about liver and other internal vascular lesions.

Dr. Susie Astner, European Laser Specialist
VBF's Ask the Laser Doctor offers expert advice on laser treatments for all vascular birthmarks by Dr. Susie Astner.

Dr. Denise Metry, PHACE Syndrome Specialist
If you have any questions regarding this syndrome, please ask Dr. Metry.

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

Lex Van der Heijden, CMTC Foundation

If you or your child has CMTC, please contact Lex with your questions.

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

Elissa-Uretsky Rifkin, Midwest Developmental Specialist
Elissa Uretsky- Rifkin, M.Ed. CMHC
is a trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

Kymberly Stephens, Licensed Associate Counselor
Ask our expert Kymberly Stephens about issues stemming from prominent birthmarks, disfigurements, or image related issues associated with genetics, trauma, burn or accident situations.

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

Zeina Tannous, M.D., Laser Dermatology Expert
Ask our expert Dr. Tannous, your questions about laser dermatology.

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

What Our Families Are Saying About Us

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

Recent forum threads

Visit the forum

Donate

Make a Donation

In Memory Donation

In Honor Donation

Bags for Birthmarks

Sponsor a Family

Shop VBF

More Ways You Can Help VBF

Volunteer to do a Day of Awareness Campaign Every year, on May 15, VBF celebrates its Day of Awareness by helping volunteers coordinate and run local events, raising awareness in their own communities.

Language Translators are needed for spanish, portugese, and aisian languages. If you can volunteer your time to translate VBF's key informational pages into one of the above mentioned languages, or in any other language not indicated, contact VBF. There are approximately 24 key pages. This is very important for our families all over the world to be able to have the highest quality of information and to have it in their own language. We can make a difference, but we need your help to continue to help families all over the world that are affected by vascular birthmarks.

Help VBF by supporting those who support us

Help support VBF by purchasing your flowers from Flowerpetal.com.
12% of your purchase price will go directly to VBF.

Vascular Birthmark Support .com offers beautiful jewelry as well as key chains and picture frames with proceeds going to benefit vascular birthmark awareness and fundraising. Visit Vascular Birthmark Support. com today!

Every time you search on the internet, if you use the GOODSEARCH search option, a penny will be donated to VBF. GOODSEARCH uses YAHOO as its behind the scenes search engine. VBF is challenging you to help us raise $5,000 in 2008.

Go to GOODSEARCH.com, and enter Vascular Birthmarks Foundation into the second box (it says “who do you goodsearch for") and hit “verify”. You only have to do it once and then each time you use GOODSEARCH a penny will go to VBF. You can also watch as the counter increases by a penny for each search.

The Vascular Birthmarks Foundation invites you to team up with the United Way to help support VBF through the convenience of payroll contributions made to the United Way, which in turn are donated to VBF.

The United Way offers a general United Way Campaign. This campaign is available to anyone in the private sector. In order to participate, contact your local United Way office and ask how you can receive a pledge card. (United Way is operated on a local basis only.)

Go GREEN and Support VBF! Vascular Birthmarks Foundation is partnering with Recycling for Charities, a non-profit organization aimed at reducing electronic waste. By donating your old cell phones, pagers, and other electronic devices you have the unique opportunity to help keep the environment clean and support VBF at the same time! Please click here to learn more about this exciting program and remember to designate VBF as your charity of choice.

Greeting Cards to Benefit VBF

REGISTER TODAY

VBF 2010 Conference in NYC Oct 9!

2010 Conference Sponsor

REGISTER TODAY

VBF 2010 Gala in NYC Oct 8!

2010 Gala Chairs
2010 Physician of the Year

Bands for Birthmarks Event Photos

VBF President and Founder wins MORE Magazine Reinvent Contest

VBF Launches 1st Hospital Based Support Group

VBF Launches 2010 DOA
We need 25 families

JOIN OUR TEAM

Microskin - Birthmarks Latest
Dr. Geronemus on Dr. Oz

CHARITYBUZZ DONATIONS FOR VBF

VBF Participates in SEFA

GO TO VBF FRONT PAGE NEWS

VBF's Honorary Chairs, Frank and Barbara Catalanotto, join the Milwaukee Brewers

FRANK MAKES METS !

Dr. Linda Rozell-Shannon: The Founder and President of VBF Tells Her Personal Story

Mission Statement: An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment and provides informational resources as well as sponsors physician education, research, and programs that promote acceptance for living with a birthmark.

español | deutsch | français | italiano | português

DISCLAIMER
Information accessed through the VBF is presented in summary form in order to impart general information relating to the diagnosis and treatment of vascular birthmarks. Such information is not complete and should not be used as a substitute for a consultation or visit with your physician or other health care provider. Information accessed through VBF is not exhaustive and does not cover every aspect of vascular birthmarks. VBF makes no warranty as to the information's completeness, reliability or accuracy. Should you have any health care related questions regarding this matter, please see your physician or other health care provider promptly.

Information accessed through the VBF is provided "AS IS" and without warranty, express or implied. All implied warranties of merchantability and fitness for a particular use or purpose are hereby excluded. VBF shall not be liable under any theory or indemnity. In no event shall VBF be liable for any damages, direct or indirect, and all other damages, direct or indirect, special, incidental, consequential or punitive, are hereby excluded even if VBF has been advised of the possibility of such damages.

|Administrative|

Founded by:
Dr. Linda Rozell-Shannon (PhD)
President / Founder
© , Vascular Birthmarks Foundation - We Are Making A Difference . All Rights Reserved.
VBF is a fully approved not-for-profit. Your donations are tax deductible.
Federal Tax ID 16-1515227

Site Design and Maintenance performed by M. Scott.


VBF Birthmarks Treatment Resources Research Register Donate Community Forum
	Ask the VBF Experts Dr. Gregory Levitin, Hemangioma and Malformations Surgeon Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors. Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains. Dr. Martin Mihm, VBF Co-Medical Director and Research Director Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors. Dr. Aaron Fay, Hemangioma and Malformations Eye Surgeon Dr. Aaron Fay will answer questions concerning eye problems and birthmarks. Dr. Roy Geronemus, NYC and International Laser Specialist If you have a question or concern about laser treatments in general, contact Dr. Geronemus. Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide. Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE VBF is proud to welcome Dr. Orbach! Corinne Barinaga, VBF Family Services Director Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral. Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions. Brian Bolinger, Esq. Director VBF Advocacy Alliance This alliance is being formed to coordinate legislative, legal, and insurance related issues regarding the diagnosis and treatment of vascular birthmarks and tumors. Dr. Anne Comi, Sturge Weber Syndrome Specialist One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome. Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist Dr. Kami Delfanian, KTS Treatment Specialist Send your questions concerning KT Syndrome to Dr. Delfanian Dr. Gary Giangola, KTS Treatment Specialist If you have questions concerning the surgical treatment of KTS or other vascular lesions of the arms, legs, or trunk, contact Dr Giangola. Basia Joyce, VBF Insurance Appeals Specialist Please send your questions regarding your appeal or request for out-of-network treatment to Basia. Dr. Joseph Edmonds, Lymphatic Malformations Surgeon Ask Dr. Edmonds your questions related to Lymphatic Malformations. Dr. Thomas Serena, Wound Care Specialist Please send Dr. Serena your questions regarding wound care for an ulcerated hemangioma or other vascular birthmark, tumor, or syndrome that requires wound care. Dr. Orhan Konez, Interventional Radiologist Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez. Dr. Jason Mouzakes, Airway Surgeon Email Dr. Mouzakes with questions regarding airway hemangiomas and other vascular lesions in the airway (throat area). Dr. Steven Fishman, Internal Lesions Surgeon Ask Dr. Fishman your questions about liver and other internal vascular lesions. Dr. Susie Astner, European Laser Specialist VBF's Ask the Laser Doctor offers expert advice on laser treatments for all vascular birthmarks by Dr. Susie Astner. Dr. Denise Metry, PHACE Syndrome Specialist If you have any questions regarding this syndrome, please ask Dr. Metry. Dr. Stavros Tombris, European Surgeon Fr. Tombris treats all forms of hemangomas, port wine stains and malformations. Dr. Stevan Thompson, Military (Tricare) Surgeon Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military. Dr. Helen Figge, Pharmacist If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge. Dr. Linda Rozell-Shannon, VBF President and Founder Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks. Lex Van der Heijden, CMTC Foundation If you or your child has CMTC, please contact Lex with your questions. Leslie Graff, East Coast Developmental Specialist Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie. Elissa-Uretsky Rifkin, Midwest Developmental Specialist Elissa Uretsky- Rifkin, M.Ed. CMHC is a trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa. Kymberly Stephens, Licensed Associate Counselor Ask our expert Kymberly Stephens about issues stemming from prominent birthmarks, disfigurements, or image related issues associated with genetics, trauma, burn or accident situations. Nancy Roberts - Make-up Specialist Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up. Linda Seidel - Make-up Expert Ask Linda Seidel your questions about make-up. Zeina Tannous, M.D., Laser Dermatology Expert Ask our expert Dr. Tannous, your questions about laser dermatology. Anna Duarte, M.D., Florida Expert Ask our expert Dr. Duarte, your questions about receiving treatment in Florida. Alicita, Spanish Expert Ask our expert Alicita, your questions in Spanish. What Our Families Are Saying About Us "We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world." Jill Brown Hi Linda Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion. Gina Recent forum threads Take a deep breath - It's not always bad news patent foramen ovale Visit the forum	Donate Make a Donation In Memory Donation In Honor Donation Bags for Birthmarks Sponsor a Family Shop VBF More Ways You Can Help VBF Volunteer to do a Day of Awareness Campaign Every year, on May 15, VBF celebrates its Day of Awareness by helping volunteers coordinate and run local events, raising awareness in their own communities. Language Translators are needed for spanish, portugese, and aisian languages. If you can volunteer your time to translate VBF's key informational pages into one of the above mentioned languages, or in any other language not indicated, contact VBF. There are approximately 24 key pages. This is very important for our families all over the world to be able to have the highest quality of information and to have it in their own language. We can make a difference, but we need your help to continue to help families all over the world that are affected by vascular birthmarks. Help VBF by supporting those who support us Help support VBF by purchasing your flowers from Flowerpetal.com. 12% of your purchase price will go directly to VBF. Vascular Birthmark Support .com offers beautiful jewelry as well as key chains and picture frames with proceeds going to benefit vascular birthmark awareness and fundraising. Visit Vascular Birthmark Support. com today! Every time you search on the internet, if you use the GOODSEARCH search option, a penny will be donated to VBF. GOODSEARCH uses YAHOO as its behind the scenes search engine. VBF is challenging you to help us raise $5,000 in 2008. Go to GOODSEARCH.com, and enter Vascular Birthmarks Foundation into the second box (it says “who do you goodsearch for") and hit “verify”. You only have to do it once and then each time you use GOODSEARCH a penny will go to VBF. You can also watch as the counter increases by a penny for each search. The Vascular Birthmarks Foundation invites you to team up with the United Way to help support VBF through the convenience of payroll contributions made to the United Way, which in turn are donated to VBF. The United Way offers a general United Way Campaign. This campaign is available to anyone in the private sector. In order to participate, contact your local United Way office and ask how you can receive a pledge card. (United Way is operated on a local basis only.) Go GREEN and Support VBF! Vascular Birthmarks Foundation is partnering with Recycling for Charities, a non-profit organization aimed at reducing electronic waste. By donating your old cell phones, pagers, and other electronic devices you have the unique opportunity to help keep the environment clean and support VBF at the same time! Please click here to learn more about this exciting program and remember to designate VBF as your charity of choice. Greeting Cards to Benefit VBF	REGISTER TODAY VBF 2010 Conference in NYC Oct 9! 2010 Conference Sponsor REGISTER TODAY VBF 2010 Gala in NYC Oct 8! 2010 Gala Chairs 2010 Physician of the Year Bands for Birthmarks Event Photos VBF President and Founder wins MORE Magazine Reinvent Contest VBF Launches 1st Hospital Based Support Group VBF Launches 2010 DOA We need 25 families JOIN OUR TEAM Microskin - Birthmarks Latest Dr. Geronemus on Dr. Oz CHARITYBUZZ DONATIONS FOR VBF VBF Participates in SEFA Search this site: GO TO VBF FRONT PAGE NEWS VBF's Honorary Chairs, Frank and Barbara Catalanotto, join the Milwaukee Brewers FRANK MAKES METS ! Dr. Linda Rozell-Shannon: The Founder and President of VBF Tells Her Personal Story
Mission Statement: An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment and provides informational resources as well as sponsors physician education, research, and programs that promote acceptance for living with a birthmark. español \| deutsch \| français \| italiano \| português DISCLAIMER Information accessed through the VBF is presented in summary form in order to impart general information relating to the diagnosis and treatment of vascular birthmarks. Such information is not complete and should not be used as a substitute for a consultation or visit with your physician or other health care provider. Information accessed through VBF is not exhaustive and does not cover every aspect of vascular birthmarks. VBF makes no warranty as to the information's completeness, reliability or accuracy. Should you have any health care related questions regarding this matter, please see your physician or other health care provider promptly. Information accessed through the VBF is provided "AS IS" and without warranty, express or implied. All implied warranties of merchantability and fitness for a particular use or purpose are hereby excluded. VBF shall not be liable under any theory or indemnity. In no event shall VBF be liable for any damages, direct or indirect, and all other damages, direct or indirect, special, incidental, consequential or punitive, are hereby excluded even if VBF has been advised of the possibility of such damages. \|Administrative\| Founded by: Dr. Linda Rozell-Shannon (PhD) President / Founder © , Vascular Birthmarks Foundation - We Are Making A Difference . All Rights Reserved. VBF is a fully approved not-for-profit. Your donations are tax deductible. Federal Tax ID 16-1515227 Site Design and Maintenance performed by M. Scott.