The Vascular Birthmarks Foundation Dr. Linda Rozell-Shannon, PhD President and Founder

You’re invited to join us with the Lenox Hill Hospital and Dr. Robert J. Rosen, Dr. Milton Waner, Dr. Francine Blei, and Dr. Roy G. Geronemus for the 2020 Annual VBF Vascular Birthmarks / Anomalies Conference & Clinic at the Lenox Hill Hospital in New York, New York, on Saturday, September 26, 2020!

As of March 13, forty families have already registered! Free hotel rooms and laser treatments fill up fast, so please register early to join us this Fall.

Our international family conference is the only one of its kind in the world. We offer lectures from the top experts in the field on the latest in research and treatment options on Saturday morning, followed by an afternoon of individual clinic appointments with our multidisciplinary team of expert specialists who provide an informal diagnosis and treatment plan to every patient.

Our conference serves individuals with any type of vascular birthmark, anomaly or syndrome including hemangiomas, port-wine stain birthmarks, lymphatic malformations, arteriovenous malformations, venous malformations, KTS, PHACES, CLOVES, CMTC, and Sturge-Weber Syndrome, among all others. We turn no family with a vascular birthmark away.

We are thankful that Dr. Roy G. Geronemus of the Laser and Skin Surgery Center of New York will again offer FREE LASER TREATMENT the day before the conference, on Friday, September 25th, to the first 50 eligible families to register.

Thanks to our sponsors, we will also grant a FREE HOTEL ROOM at the beautiful Shelburne Affinia Hotel in New York City for Friday, September 25th, to the first 50 eligible families to register.

We also plan to offer dental and orthodontic exams for those qualified, insurance support, psychotherapy support groups, birthmark support networking opportunities, and professional make-up consultations, as well as a professional daycare service, breakfast, and lunch for your whole family.

Your $100 all-inclusive registration fee ($25 for those requesting a fee waiver) includes all of our conference and clinic services, including free laser therapy and the hotel room for qualified individuals,  and admission for your entire family.

At our 2018 International family conference in New York, we welcomed over 300 people, provided over one hundred individual clinic appointments, granted over 75 free hotel rooms, and made possible at least 42 free laser treatments. Our goal is to make this years’ event our most impactful yet.

Please review the information below, and our Registration Planning Checklist, for complete details about the event and don’t hesitate to contact us at conference@birthmark.org with absolutely any questions. Our VBF Family looks forward to welcoming you this September!

Free laser treatments and free hotel rooms fill up fast and are subject to availability and eligibility,  so please register early to begin the screening process and to secure your spot today.

Note from Dr. Linda on Coronavirus:

Posted March 13, 2020

I hope you are as excited as I am about our up-and-coming Annual Conference in New York City. As of today, 40 individuals and families are registered, and our 2020 Annual Conference & Clinic is scheduled to take place, as planned, on September 26, 2020 in New York, New York. We are going to have great presentations by world renown experts and many specials, such as free laser and free dental/orthodontic exams.

I want you to know that VBF is taking all necessary precautions to ensure the health and safety of attendees in light of concerns about COVID-19, commonly known as the coronavirus. We are following recommendations from the NYS Department of Health, Centers for Disease Control, US Department of Health and Human Services and the World Health Organization regarding recommendations for large gatherings, closely monitoring developments and staying abreast of updates.

As of today, we are scheduled to proceed as planned for our September conference, but will keep you posted if anything changes. We want to assure anyone planning to attend the VBF Conference that their health, safety, and security is our top priority.

Here’s how we are preparing:

  • Monitoring all guidance and recommended safety measures issued.
  • Following the WHO’s recently released Key Planning Recommendations for Mass Gatherings in the Context of the current COVID-19 Outbreak.
  • Planning to follow all recommendations and protocols for heightened cleanliness at event facilities, including increasing the number of hand sanitizing stations located throughout the facility.
  • Actively encouraging attendees to take common-sense precautions and follow safety guidelines to prevent the spread of illness.

VBF is taking COVID-19 very seriously and is fully engaged and prepared to host a successful Meeting in New York City. We encourage attendees to monitor the WHO’s Travel Advice as they consider their travel arrangements to the VBF Meeting, as well as its recommendations for protecting themselves from infection.

We are prepared to respond if something in NYC or at the Lenox Hill Hospital interferes with our plans for the conference. No one can predict that far ahead but we are encouraged that the outbreaks in China are decreasing. We would all like to get back to our “pre” virus lives.

Additional resources:

CONFERENCE / CLINIC EVENT DETAILS

The Conference / Clinic is one full day, from 7:30 am - 6:00 pm, on Saturday, September 26 at the Lenox Hill Hospital in New York, NY, which includes the conference lectures in the morning and a clinic with world-renowned vascular birthmark experts in the afternoon. Free laser treatments and dental exams will be offered by appointment only on Friday, September 25, the day before the conference itself. Browse the sections below for complete details about all that our international family conference has to offer.

Check-in

Registration will begin at 7:30 am on Saturday, 9/26 at the Lenox Hill Hospital located on the upper east side of Manhattan in New York, New York. Upon check-in, you will receive a clinic folder with all of your individually scheduled appointments for the afternoon with our teams of specialists, which are based on the preferences you submit in your registration form. Our Clinic Coordinator, Corinne Barinaga, will be on hand all day to review and/or make any changes needed to your clinic schedule so that we can ensure you get the most out of our clinical services. We will also have a stroller-check available and volunteers on hand to answer any questions you may have.

Breakfast

Free continental breakfast will be provided for your entire family after you check-in at the conference. We will have food options available to accommodate all dietary restrictions, which you can indicate on your registration form. Arrive early to enjoy breakfast with all of the other individuals and families in attendance, as well as our team of volunteers and medical professionals. This is a great opportunity to meet others and ask any questions you may have.

Daycare

Professional daycare will be provided to all children attending, including siblings and children, though children are always welcome at the lectures, as well. Our secure daycare will be located just upstairs in the hospital from the conference lecture rooms, so you can feel free to check in or visit at any time. In addition to our professional, certified daycare providers, many of our longtime VBF volunteers, including teachers and nurses, will be on hand to assist and we hope that our therapy dogs will be able to join the children again this year. Daycare will conclude after the conference lectures so that the children can join you for lunch and the afternoon clinic. You can indicate on your registration form whether you require daycare for anyone in your party, and a secure check-in/out system will be in place. Make sure to send your child with any necessary items, including pacifiers, bottles, and anything else you think might make their stay in daycare more enjoyable. Toys, games, and snacks will be provided to all the children. This is a great opportunity for children to meet others with birthmarks like theirs, some for the very first time.

Conference Lectures

Conference lectures will begin at 8:30 am, after check-in, breakfast, and daycare drop-off. Some of the top vascular birthmark medical specialists in the world donate their time to provide their expertise at our conference and clinic. Lectures are tailored towards families, not medical providers. They include presentations concerning hemangiomas, port wine stains, vascular malformations, venous malformations, lymphatic malformations, Klippel Trenaunay Syndrome, and Sturge Weber Syndrome, among all other vascular birthmark types and associated syndromes. There will be multiple lectures happening in different rooms throughout the hospital, so you will be able to move from room to room to hear the lectures that interest you and pertain to your birthmark, anomaly or syndrome.

A final itinerary will be provided closer to the event so you can plan which lectures you’d like to attend, and our volunteers will be on hand every step of the way to provide recommendations and directions. While we cannot provide the lecture presentation files themselves, due to propriety reasons, we will have volunteer note-takers on hand to take notes during each lecture, and we will send those notes after the conference to all registrants. The lectures will conclude with a brief Q&A in each room, though you will get a chance to meet individually with our teams of specialists to ask your specific questions during the afternoon clinic.

You can check out our 2018 Conference Itinerary for a sample itinerary, including talk titles and topics, as well as a listing of faculty. Our 2020 Conference Itinerary will be released once finalized.

Lunch & Learn

After the lecture Q&A, those with children in daycare will pick them up and join the others for a free boxed lunch for every member of your family. There will be sandwich options available to accommodate all dietary restrictions, which you can indicate on your registration form. You can join us for lunch in the conference lecture room for a Lunch & Learn presentation from Scott Cupples on our VBF Global Ambassador Program. If your first clinic appointment is not until later in the afternoon, you are free to take your lunch and explore the upper east side of Manhattan until your clinic time, just be sure you’re back at least 30-45 minutes before your first scheduled clinic to check-in, otherwise, you could miss your spot.

Clinical Services

After lunch, the clinics will be held from 1-6 pm, just upstairs in the hospital for your convenience. Our multidisciplinary teams of specialists will see each and every patient by appointments that are made by Dr. Linda Rozell-Shannon, Ph.D. our President / Founder who has over 25 years of experience networking children and adults with vascular birthmarks into treatment. Rest assured that Dr. Linda and our Patient Advocacy team will review each and every file to ensure that you are seen by all the relevant teams, which are categorized by birthmark type, anomaly or syndrome. You will receive your full clinic schedule upon check-in on the morning of the conference and can ask any questions/request any changes upon check-in if any are needed.

In addition to our multi-disciplinary team of doctors, our afternoon clinic will also include psychotherapy and insurance support groups, as well as professional make-up consultations for those with birthmarks. We also hope to again offer orthodontic exams and will provide more information on availability as the event approaches. Please arrive at least 30 -45 minutes prior to each of your scheduled clinic appointments to check-in.

Birthmark Support Network

New this year in New York will be our Birthmark Support Network, which will be open all day throughout the event to enable you to connect informally with our team of individuals with vascular birthmarks, parents, and medical professionals. We have big plans for this new support service and look forward to making this available as a way for you to share your story and make lasting connections with others.

Free Laser Treatment

Dr. Roy G. Geronemus, one of the top laser specialists in the world for vascular birthmarks, will be providing a FREE LASER TREATMENT, without anesthesia, to the first 50 eligible registrants who qualify. All laser treatments will be on Friday, September 25, the day before the conference on Saturday, at the Laser and Skin Surgery Center of New York, located in lower Manhattan. Current patients of Dr. Geronemus are not eligible for free treatment and all registrants must be pre-screened by Dr. G’s staff for eligibility.

To be considered for a free laser session, you will need to be screened and pre-approved. Plan to follow the instructions provided by email after you register to contact Dr. Geronemus’ office to have your eligibility reviewed and to get scheduled. We connect you directly with Dr. G’s experienced team to streamline the review process, connect you with the experts who can answer any of your laser questions and for HIPPA purposes. Please send any medical records directly to Dr. G and his team, rather than to the VBF.

Free Dental Exams

Dr. David Darrow, our vascular birthmarks dental expert, will be working to provide free comprehensive dental exams on Friday, September 25th to those who qualify by appointment only. We will provide updates to eligible individuals as they become available and hope to be able to provide this service again this year. Note that we may also offer free orthodontic exams at the Conference on Saturday afternoon, subject to the availability of our expert. Stay tuned for updates!

Free Hotel Room

We are pleased to again offer a FREE HOTEL ROOM ($305 + value) for one 1-night with check-in on Friday, September 25 at the beautiful Shelburne Affinia Hotel in New York, NY to the first 50 eligible families to register. Only those at least two (2) hours outside of the NY metropolitan area will be considered for a free hotel room. You can indicate on your registration form that you’d like to be considered and we will email you to confirm your eligibility and provide you with instructions to book. Our group rate includes access to the hotel’s amazing rooftop with unmatched views of Manhattan, a complimentary wine hour, waived facility fees, and the option to extend your stay at the group rate +/- three days for up to four people. Both double and single rooms will be available, with the double rooms able to accommodate families.

To streamline the booking process this year, you will be independently responsible for booking your entire stay at the hotel using our unique link (which will be provided by email) or by calling our hotel representatives and securing the room using your own credit card. Your credit card will only be charged upon check-in for the cost of any nights in addition to the one-night VBF is paying for, as well as any incidentals such as room service. If you are just staying for the one free night and incur no incidentals, your credit card will not be charged.

*September 1, 2020, is the cut-off date to make hotel reservations, change an existing reservation or cancel your reservation. If you fail to cancel an existing reservation before this date,  the hotel will charge you the full amount for the room + taxes/fees.

If you utilize our free hotel room and fail to attend the conference, VBF will charge your credit card for the full amount of the value of the hotel room for Friday night ($305/night). This is to ensure that all of our free rooms are utilized only by families with vascular birthmarks who attend our conference according to our public, non-profit mission. Thanks for helping to ensure that these rooms are reserved for those within our community who really need them.


Venues

Conference & Clinic Venue

Saturday, September 26
7:30 am – 6:00 pm

Lenox Hill Hospital
131 East 76th Street, between Lexington Avenue & Park Avenue
New York, NY 10075


Laser Treatment Venue

Friday, September 25
By appointment only

The Laser and Skin Surgery Center of NY
317 East 34th Street
New York, NY 10016
P: (212) 941-5055
F: (212) 686-7305
E: mail@laserskinsurgery.com
W: https://www.laserskinsurgery.com

 


Free Hotel Room Partner

Check-in on Friday, September 25
By reservation only

Shelburne Affinia Hotel
303 Lexington Ave
New York, NY 10016
P: (212) 689-5200
W: https://www.affinia.com/shelburne-hotel-suites/


Registration & Fees

Your all-inclusive $100 registration fee includes all the services described above and admission for your entire family, including access to the faculty presentations, clinic appointments, breakfast, lunch, and daycare (if needed), psychotherapy support, insurance support, make-up consultations, free laser treatment, dental exams, orthodontic exams, and 1-night hotel lodging, subject to eligibility and availability. If there is a financial hardship, the full $100 registration fee will be waived so long as you select the $25 payment option on the registration form and pay the mandatory $25 processing fee.

If you need to cancel for any reason, we would be happy to issue you a full refund of your registration fee, upon request, so long as you cancel before September 1, 2020. If you do cancel and have booked a free hotel room or free laser treatment, you will be independently responsible for canceling the same and may be charged for the full cost of the free hotel room ($305 / night + taxes and fees) by the hotel if you fail to cancel before their cutoff deadline of September 1, 2020.

To register, use the links below to register online or download, print and mail-in / email a registration form. We need at least one clear photo (uploaded during the online registration process or sent by mail or email to conference@birthmark.org) showing the birthmark for each patient so that we can ensure that the patient is scheduled with the appropriate clinic team, and so that we can assess if the patient is qualified for the free laser treatment.

Contacts & Questions

Questions? Check out our Registrant Planning Checklist for FAQ. You can e-mail your questions to Kristin with our event team at conference@birthmark.org. Email is the preferred method of communication. You may also call Kristin at (518) 992-5746. Voice messages will be returned within two business days.