The Vascular Birthmarks Foundation is thrilled to announce that 2024 marks our 30th Anniversary of assisting families affected by a VBARS (vascular birthmark, anomaly, and/or related syndrome). Throughout 2024 we will be celebrating our accomplishments such as networking over 150,000 children and adults into treatment, and providing hundreds of free services to patients from all over the world.

We will be having two events to commemorate this special occasion.

VBF 2024 Super Clinic
The first event is our VBF 2024 Super Clinic on Friday and Saturday, October 4-5, in New York City. Co-hosts will be Dr. Roy Geronemus and Dr. Robert Rosen.

Our annual super clinic is the only one of its kind in the world. We will provide individual clinic appointments with our multidisciplinary team consisting of the top experts in the field. Additional services include: free laser treatment, free ultrasound exam, free dental exam, free Sturge-Weber Syndrome assessment, free psychotherapy session, free hotel room, and free parking. Virtual lectures from our team of experts will also be made available. Your $100 all-inclusive registration fee ($25 for those requesting a fee waiver) includes all our super clinic services, as needed.

Our VBF super clinic serves individuals with any type of vascular birthmark, anomaly and/or related syndrome (VBARS) including hemangiomas, port-wine stain birthmarks, lymphatic malformations, arteriovenous malformations, venous malformations, KTS, PHACES, CLOVES, CMTC, and Sturge-Weber Syndrome, among others.

Free laser treatments and free hotel rooms fill up fast and are subject to availability and eligibility, so please register early to secure your spot.

The preliminary schedule is as follows:

On Friday October 4, free dental, ultrasound, SWS assessment and “Birthmark Glam Art” will be offered.

On Saturday, October 5, there will be consultation appointments, psychotherapy sessions, and free laser treatments.

All services will be in the Mid-town NYC area. An address will be updated shortly.

Clinic Teams Include:
Team A: Hemangiomas & Head & Neck Lesions
Team B: Extremity & Internal Lesions
Team C: PWS
Team D: SWS & PHACE Syndrome 

Other experts will be on each team and will be available for meeting with families throughout the day. 

If you are a health care professional that would like to attend, please click here.

30th Anniversary Gala Celebration

Our second event is the 30th Anniversary Gala celebration on Friday evening, October 4 at the Yale Club in NYC. The gala will highlight Dr. Linda’s 30 years of service to the birthmarked community. Musical performances will be by individuals in our birthmarked community. If you are interested in learning more about the gala, please see The Vascular Birthmarks Foundation’s 30th Anniversary Gala information.

Questions? Email Chris at chris@birthmark.org

VBF 2024 Super Clinic

SUPER CLINIC EVENT SCHEDULE

The VBF 2024 Super Clinic on October 4-5 offers consultations, psychotherapy sessions, ultrasound, dental, SWS exams, and laser treatments to individuals with a vascular birthmark, anomaly and/or related syndrome (VBARS). 

CHECK-IN

When you arrive at your first scheduled appointment, you will receive a clinic folder with a list of all your individually scheduled appointments, which will be based on the preferences you submit on your registration form. Our VBF staff and volunteers will be on hand to review and/or make any changes needed to your schedule so that we can ensure you get the most out of our clinical services. Please bring relevant medical records with you. Request any examinations or imaging studies from your current medical team and come prepared with your medical imaging studies on a CD, if possible, to make the most of your clinical session.

FREE DENTAL, ULTRASOUND, and STURGE-WEBER SYNDROME EXAMS

8:30 AM- 1:00 PM Friday, October 4, Dr. David Darrow, our vascular birthmarks dental expert, will provide free comprehensive dental exams to individuals who have a vascular birthmark in their gums or mouth area. Dr. Giacomo Colletti, Maxillo Facial Surgeon and VBF Italy/Europe Medical Director, will offer free ultrasounds. Dr. Anne Comi, pediatric neurologist, will provide free Sturge-Weber Syndrome (SWS) evaluations. The location will be updated soon.

FREE CLINIC APPOINTMENTS

8:30 AM – 1:30 PM Saturday, October 5, all clinic appointments will take place. The location will be updated soon. 

Please check in 30 minutes before your first scheduled appointment, or you may miss your spot. Our multidisciplinary teams of specialists will see every patient according to their appointments scheduled by Dr. Linda Rozell-Shannon, Ph.D. our President / Founder, who has over 29 years of experience networking children and adults with vascular birthmarks into treatment. Rest assured that Dr. Linda and our VBF team will review each file to ensure that you are seen by all the relevant teams, which are categorized by birthmark type, anomaly or syndrome. 

The multi-disciplinary teams of doctors will include: 

Team A: Hemangiomas & Head & Neck Lesions 

Team B: Extremity & Internal Lesions 

Team C: PWS 

Team D: SWS & PHACE Syndrome 

FREE PSYCHOTHERAPY SESSIONS

9:00 AM – 1:00 PM Saturday, October 5, all psychotherapy sessions, will take place. The location will be updated soon.

FREE LASER TREATMENT

8:30 AM – 5:30 PM Saturday, October 5, all free laser treatments will take place. The location will be updated soon. 

Dr. Roy Geronemus, one of the top laser specialists in the world for vascular birthmarks, will be providing free laser treatments, without anesthesia. (Some nerve blocks may be used.) You will be connected directly with Dr. G’s experienced team to streamline the process, answer any of your laser-related questions, and for HIPAA purposes. 

FREE HOTEL ROOM

Hotel location and booking details will be emailed to you after registration. Only those registrants who live at least two (2) hours outside of the NY metropolitan area will be considered for a free hotel room. September 1 is the cut-off date to make hotel reservations, change an existing reservation, or cancel your reservation. If you fail to cancel an existing reservation before this date, VBF will charge you for the full amount for the room + taxes/fees. 

If you utilize our free hotel room and fail to attend the Super Clinic, VBF will charge your credit card for the full amount of the value of the hotel room for Friday night. This policy is in place to ensure that our free rooms are used only by individuals and families with vascular birthmarks who attend our Super Clinic according to our public, non-profit mission.

FREE PARKING

Free parking will be made available. Details to come.

TRAVEL

VISA

If you need a visa, please contact your embassy to find out requirements. When requested by you, Dr. G’s office will try to assist in providing you the necessary letter of support needed to come for the free treatment.

COVID-19 PRECAUTIONS

Please check New York State Department of Health for the latest guidelines: https://www.health.ny.gov

REGISTRATION PROCESS AND FEES

There are several steps to the registration process:

1. Complete the online registration form.

2. You will receive a confirmation email from VBF. This means you have successfully registered.

3. You will receive several reminder and update emails that will include important information leading up to the Super Clinic. Please continue to look for them, read them thoroughly, and respond as needed.

4. Forty-five days before the event, you will receive an email asking you to once again confirm that you still plan to attend. If you do not respond by the deadline assigned in the email, you will be taken off the registration list. All appointment spots are precious and must be saved for those who intend to show up. If at any time your plans change and you can no longer attend, please let us know.

5. Approximately two weeks before the event, you will receive an email with a schedule of your appointment times.

Registration Fees: Your all-inclusive $100 registration fee includes all the services described above, including access to the clinic appointments, psychotherapy support, free laser treatment, dental, ultrasound and SWS exams, virtual lecture series, free parking, and 1-night hotel lodging, subject to eligibility and availability. If there is a financial hardship, the full $100 registration fee will be waived when you select the $25 payment option on the registration form and pay the mandatory $25 processing fee.

CANCELLATION POLICY

Hotel: September 1 is the cut-off date to make hotel reservations, change an existing reservation or cancel your reservation. If you fail to cancel an existing reservation before this date, VBF will charge you the full amount for the room + taxes/fees.

Registration: VBF will give a 100% refund of your registration fee if you cancel at least 30 days prior to the Super Clinic (by September 6) or a 50% refund if you cancel by September 20. There will be no refunds after September 20. 

FOOD

No food will be provided. There are many affordable dining options within walking distance from the hotel and all event venues.

DAYCARE

No daycare will be provided. Families are allowed to accompany their child into the Super Clinic. 

REGISTER ONLINE

Use this link to register online or download, print and mail-in / email a registration form. We need at least one clear and current photo of the birthmark uploaded during the online registration process or sent by mail or emailed to info@birthmark.org showing the birthmark for each patient so that we can ensure that the patient is scheduled with the appropriate clinic team, and to assess if the patient is qualified for the free laser treatment. (Please add in the subject line: Birthmark photo for 2024 Super Clinic registration.)

QUESTIONS

Questions? Email Chris Molluso at chris@birthmark.org

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