My daughter Alysa was born in October 2017 after a healthy pregnancy and uncomplicated delivery. The doctor thought Alysa had a bruise from her birth but soon after we knew it was not a bruise. Our journey into vascular birthmarks began.
At 1 week old Alysa was diagnosed with a port wine stain. She had her first check of her eyes for signs of glaucoma at 2 weeks old, and we declined an MRI in favor of clinical monitoring for SWS due to the location of her PWS. Alysa’s port wine stain covers her left cheek, ear, and neck. She is monitored regularly for glaucoma and gets laser treatments in Kansas City.
Alysa doesn’t let anything bother her and proudly wears her “special spot” each day. She is a smart, happy, healthy, and silly little girl! I don’t know what we would do without her!