The Vascular Birthmarks Foundation

Dr. Linda Rozell-Shannon, PhD President and Founder

Helena Paxton, United States (US), Tennessee

I was diagnosed with blue rubber bleb nevus syndrome at 18 months old. Since, I have a right parieto-occipital AVM that bled before I was born. I also have 3 venous malformations on my left leg and toes. 2 paraspinal muscle lesions and a lesion on my right retina.