The Vascular Birthmarks Foundation

Dr. Linda Rozell-Shannon, PhD President and Founder

Jill Campbell, United States (US), Iowa

I am a mother of a beautiful 2.5 year old with a PWS on the corner of her left eye that goes approximately 2 inches into her scalp. We found out at 1 month that she has glaucoma in that eye, which gives her the Diagnosis of Sturge Weber Syndrome Type 2. We feel lucky to have found out at birth about her PWS as I know many others wait and wait to know more about their diagnosis. She has had 5 laser treatments and it has been a success. She also is on Timolol twice a day for her glaucoma. After 2 MRI’s, there is currently no issues with the brain. I am more than willing to talk to anyone with questions. I love my daughter and would share our journey with anyone.