The Vascular Birthmarks Foundation Dr. Linda Rozell-Shannon, PhD President and Founder

Josie Moore, United Kingdom (UK), Wiltshire

I am a mother of a beautiful boy Zachary who is currently 3 years old and is just starting his laser treatment journey on his PWS at the John Radcliffe Hospital Oxford . We live in Wiltshire in the United Kingdom. My hope is to bring a connection to others in the UK to VBF and to bring more awareness. Currently I run a PWS support group here in the UK through Facebook which has reached out to over 400 members and is continuing to grow. Members are parents, adults with PWS and anyone else affected by PWS.