The Vascular Birthmarks Foundation

Dr. Linda Rozell-Shannon, PhD President and Founder

Kathryn Ong, Malaysia, Johor

I was born in a small town in Malaysia with PWS on my my face and 80% of my body. I also have glaucoma and varicous veins on my right leg due to my PWS. When I was born, doctors didn’t know what it was and they just advise my parents these are blood vessels and to keep me safe as I bleed easily. Over the years my PWS has started to develop into nodules especially on my face and there is pretty nothing much my doctor can for me.

Growing up I had my share of bullies and I became confident individual. I want to inspire others and show the world everyone has a choice in how we want to live our life.

I would like to bring more awareness that we can achieve what we set out to achieve and I am ready to help people with the similar problems in any way all over the world.