Lyndsey Smith, United States (US), Michigan
Lola B made me a Mom 5 years ago and has made me a stronger, better person ever since. Lola was born with a hand shaped port wine stain on the right side of her face. Despite the PWS encompassing her eyelid and the lateral part of her sclera, she has defied the odds thus far and has never had a seizure, abnormal EEG, or high intraocular pressure. She truly is one in a million. She has had 22 pulse dye laser treatments to date and is very well acclimated to the whole process, even holding her own mask to put herself to sleep. She is resilient, brave, smart, beautiful, charismatic and so much more. Any advice or support I am able to give to other families in similar situations would be an honor. Please feel free to reach out.