When my son was diagnosed with Angiokeratoma Circumscriptum he was almost a year old. It took us months of calling doctors, advocating to get him into Vascular clinics in our area. His birthmark is extremely rare, and only a small percentage of the population has this diagnosis.
As a mom it is easy to feel alone and wonder what is going to be the future for my child. While we are still trying to find a treatment plan and answers we are hoping to help others along the way not feel alone. Its important to us to be a voice for our son and so many others like him!