The Vascular Birthmarks Foundation

Dr. Linda Rozell-Shannon, PhD President and Founder

Oliva Childs, United States (US), New Jersey

My name is Olivia Childs, and I have Klippel Trenaunay Syndrome on my right leg. I was misdiagnosed for the first four years of my life before a pediatric dermatologist sent me to Dr. Robert Rosen.

I am 14 now and have had 24 sclerotherapy treatments with him, at Lenox Hill Hospital, NYC. I have also had three additional orthopedic surgeries for my right knee and my leg discrepancy, which was related to my KTS.

Throughout my life, I have faced discrimination because of my challenges, but I never let it get to me. With the help of the Vascular Birthmarks Foundation, I have been able to meet many other girls around my age who have similar cases as I do. VBF has helped me find a much needed support group. I want to be able to spread awareness about VBF as a Global Ambassador, and about KTS in general, so that other patients can be supported like I was.