The Vascular Birthmarks Foundation

Dr. Linda Rozell-Shannon, PhD President and Founder

Samantha Lemanske, United States (US), Kansas

Evelyn Grace, our 19-month-old daughter was born at 34 weeks due to preeclampsia. She came into this world with a fight and a 17 day stay in the NICU at Overland Park Regional in Overland Park, KS. Evelyn’s doctor was sure it was just brushing from her traumatic birth. A few days later, her father and I were told the news that it was a Port Wine Stain birthmark. We were shocked, as we had never heard of a such thing before that moment. Evelyn was soon tested for Sturge-Weber Syndrome and possibly blindness in her left eye and waiting on the results seemed like forever. Thankfully enough, Evelyn was cleared of any further complications. Days went by, we left the NICU and was referred to a Dermatologist to talk about laser option, this was intimidating. Her Dermatologist recommended 4-6 treatments for her PWS to fade over the next few years. Here we are 5 treatments in and still have little to no fading on Evelyn’s cheek. We get looks, questions and comments while in public, which eat away at me considering Evelyn has no idea what is being said and just can’t help but smile back. We have learned to ignore the comments and just remember how special she truly is. We will continue our journey with treatments.