I’m Sarah, 31, and live in New York with my three children and husband. I have a PWS covering over 50% of my body. When I was younger I was severely bullied because of my birthmark. While not an easy experience, I used the fuel to ignite my personal journey in speaking out against bullying, as well as being an advocate to others in need. While I did have several laser treatments at a young age when in 8th grade I decided against further treatment and came to fully accept and love myself both inside and out. While I’m currently a stay at home mom with my young children, I dream of doing advocacy work, spreading a message of self-love and body positivity and one day writing a children’s book to address these issues. The first step in my journey is connecting and being a resource for others on a similar journey. I want to give parents and children hope that you can come out of this medical journey with confidence, a strong spirit and appreciation for life.