The Vascular Birthmarks Foundation

Dr. Linda Rozell-Shannon, PhD President and Founder

Taylor Hoover, United States (US), Nebraska

Colson is 11 months old with a PWS that covers his face, as well as the whole left side of his body, down to his toes! He has been diagnosed with Sturge Weber Syndrome and Klippel Trenaunay Syndrome. After he was born, we left the hospital knowing little to nothing , other than he had a birthmark. When he was hospitalized at just six weeks old, we then started getting the answers we needed. Almost one year later, multiple seizures, one surgery, one procedure, several medications, Neurologists, Dermatologists, Ophthalmologists, Physical Therapy, Occupational Therapy, ENT, and Genetics, and we are on our way to creating the best possible outcome of life we can provide for him! . Everyday is living in the unknown, but everyday I am thankful for our journey thus far. He is an absolute blessing and the strongest person I know. He is my HERO!