The Vascular Birthmarks Foundation Dr. Linda Rozell-Shannon, PhD President and Founder

These are some of the many ways our VBF Family is coming together to raise awareness around the world for our VBF Awareness Movement this year.

How will you raise awareness this year?

VBF Anti-Bullying Pledge

Over 1,050 people have signed the VBF Anti-Bullying Pledge. Take 1 minute to stand with us against bullying. Sign the pledge today.

Alabama

  • Amanda Leger wins Buddy Booby’s Birthmark FREE book give away and sends adorable photo of a Read Along with her daughter and husband.

Arizona

California

  • Linda hosts a Facebook Live session with VBF Expert Dr. Stuart Nelson on the topic of To Treat or Not to Treat on May 21, 2018.
  • Laura and Devin Fischer host classroom awareness event at St. Paul’s Early Childhood Development Center in Orange, CA to honor their son Caleb with a Buddy Booby’s Birthmark read along, goodie bags with informational materials, and bracelets for all the children.
  • Dr. Linda hosts a Facebook Live session with VBF Expert Dr. Stuart Nelson on the topic of To Treat or Not to Treat on January 11, 2018.
  • Ben and Alison Maddox created and shared a Give2myVBF page for their son Carson to celebrate his 6th birthday.

Colorado

  • Kelly & Trent Bossley celebrate Day of Awareness by reading “Buddy Booby’s Birthmark” and handing out VBF stickers to their son Nolan and daughter Lydia’s preschool class in honor of Lydia who has a PWS.
  • Kelly Bossley shares a Buddy Booby’s Birthmark Read-Along photo at her daughter’s preschool.
  • Michelle Lukaschewski with the Purple Polka Dot Team registers #TeamVBF for the Colfax Marathon in Denver, Colorado on May 19-20, 2018.

Connnecticut

  • VBF Board member Sharon Israel hosts Park Lane Jewelry fundraiser for VBF’s Month of Awareness in honor of her daughter Olivia who VBF helped network into treatment.
  • Eric Pixley spills his heart out in viral facebook video thanking his parents for supporing his journey living with a port wine stain birthmark.
  • VBF’s Global Ambassador, Eric Pixley, raps about his birthmark, encouraging others to #PutOnYourBirthmark on May 15 for VBF’s Day of Awareness.

Florida

Illinois

  • The Sheehan Family is hosting a Bravelets (Be Brave bracelets) online fundraiser in honor of their daughter Reagan. Purchase today and Bravelets will donate 25% to VBF in Reagan’s honor.
  • Lauren Sheehan hosts a Facebook Fundraiser for VBF in honor of her daughter Reagan.

Kentucky

Maine

  • VBF Board Member Jeff Bergen partners with teachers in Maine to sponsor a 1st grade classroom awareness campaign in honor of a little girl with KTS, donating informational materials, stickers, bracelets, and 80 Buddy Booby’s Birthmark books for each child in the class.

Michigan

  • Jody Lee and the Purple Polka Dot Race Team SOLD OUT the AR Workshop, where three people shared their birthmark stories while their group of 40 worked on projects, all while raising $628 for VBF through the AR Workshop’s gift and a raffle.
  • Save the date for the Lee Family’s 3rd Annual Purple Polka Dot Walk/Run on August 12, 2018 in Stony Creek Eastwood Beach
  • The Lee Family & Purple Polka Dot Team hosts 23 people at Yoga & Brunch on May 19 in Michigan and donates $761 to VBF’s mission.

Minnesota

  • Aubrey Meister wins a FREE Buddy Booby Book on Facebook during our March Madness: Mad About Buddy Booby Campaign, and gets her state on the map.

New Jersey

  • Crowned Mystic Mermaid of central New Jersey, Allison raises awareness for VBF through a Buddy Booby live read-along on Facebook.

New York

  • Dr. Linda hosts a Facebook Live session with VBF Expert Dr. Roy Geronemus and VBF Global Ambassador Scott Cupples on the topic Importance of Early Treatment of Vascular Birthmarks on March 16, 2018
  • Dr. Linda hosts a Facebook Live session with VBF Expert Dr. Milton Waner on the topic Treating Hemangiomas and Vascular Malformations on February 27, 2018.
  • Dr. Linda hosts a Facebook Live session with VBF Psychosocial Expert: Leslie Graff on the topic Psychosocial impact of a vascular birthmark on January 25, 2018.
  • Save the date for the Catalanotto Foundation’s 8th Annual Golf Outing on August 6th 2018 at the Old Westbury Country Club.
  • VBF Physician Expert Dr. Gregory Levitin shares adorable photo reading the Buddy Booby’s Birthmark Book to his daughter Cora.
  • Linda’s Sponsor a Family Facebook Fundraiser reaches its goal of raising $1,500 to sponsor three families to attend the NYC Conference.

Oklahoma

  • Mother and daughter team Cindy & Bailie Heston set to deliver informational materials to 18 local physicians, as they raise awareness in the Oklahoma area.

Pennsylvania

South Carolina

  • 2017 VBF Catalanotto Perseverance Scholarship Award Recipient Harrison Wile pays it forward with a college informational booth and bake sale fundraiser for VBF at Clemson University in South Carolina.

Tennessee

Texas

  • Dr. Linda, VBF Board Chair Sherry Parrish and the VBF on the Move Team meet with three birthmark families in Texas.

Washington

  • Mother wins first-ever Buddy Booby March Madness Give Away on Facebook and gets Washington State on the map.

Czech Republic

  • Lenka Gotart shares photos for May 15 Day of Awareness.

Lebanon

Mexico

  • Gabriella Castellanos continues the #Biking4Alonso tradition in honor of her son with a PWS with two ride-along events at spin studios on May 5 in Polanco and May 17 in Arcos Bosques, and a Give2MyVBF page so that people all over the world can ride along virtually. Gaby also hosts a Facebook Live make-up tutorial to promote #PutOnYourBirthmark day.

United Kingdom

  • Dawn McKay of the UK raises awareness with an informational event at her daughter’s school.

India

  • Batool Kausha and Brig. R.K.Kaushal, a veteran from the Indian Army, distribute 100 VBF brochures and work with a panel of 12 doctors at a Vascular Birthmarks Awareness program in a medical camp in Bhopal city, capital of the state of Madhya Pradesh in Central India.

Virtual

March Madness: Mad About Buddy Booby’s Birthmark

  • During our March Madness tournament, VBF shared Buddy Booby’s Birthmark, the story of VBF’s official mascot with a port wine stain, with families in the following states: AL, AZ, CO, DE, KY, MN, MO, NY, NK, PA, TN, TX, and WA, and even two countries: Canada and Australia! You can still get your state on the map today.

 

Purple Polka Dot Race
Purple Polka Dot
Birthmark Bash
North Texas Birthmark Bash5K Race in Michigan

Check back as we add more events

Worldwide
– Put On Your Birthmark Campaign #askaccept #VBFawareness #birthmark #PutOnYourBirthmark
– Share Your Birthmark Story with VBF
– Support a Give2myVBF personalized fundraiser page
May 2 Published article in AAP News, co-authored by Dr. Linda Rozell-Shannon with Dr. McInerny and Dr. Cohen
May 15 #PutOnYourBirthmark Day of Awareness video by Dr. Linda Rozell-Shanon
May 17 Webinar for pediatricians Dr. Linda Rozell-Shannon with Dr. Bernard Cohen
May 31 What is a Vascular Birthmark and Who is VBF? by Dr. Linda Rozell-Shannon

– Buddy Booby’s Birthmark Read-Alongs in 4 countries and 28 states: AZ, CA, CO, CT, FL, IL, IN, KY, MA, MD, MS, MI, MO, NE, NC, NV, NY, NJ, NH, OH, OK, OR, PA, RI, TN, TX, WI, WY

California
Diana Mendoza shares the story of her daughter Emely
The Maddox Family – Happy 5th Birthday to Carson! fundraiser page
VBF scholarship recipient Julienne Wood posts acceptance speech
Port wine stain, Vascular Birthmark Awareness month, challenge on YouTube by Aysia
Professional photo shoot with Paige Lauren Billiot (691 likes)

Connecticut
Eric Pixley shares how he became Port Wine & Proud
Kara Leake volunteered to be a VBF Parent Representative

Florida
Dr. Ana Duarte with the Children’s Skin Center and Gables Skin Center office #PutOnYourBirthmark party

Illinois
Sheehan Family’s Bravelets (Be Brave bracelets) fundraiser
Kentucky
Ethington Family’s Buddy Booby’s Birthmark book Read-Along
Michigan
July 12 Painting With a Twist fundraiser in Rochester, MI
Aug. 13 Purple Polka Dot 5K Walk/Run at Stony Creek Eastwood Beach
New Jersey
Jessica Baskin donates 20% of sales of original Bright Heart Card
New York
May 13 Marked for Greatness 5K at Vestal Coal House
Capital District NY Day of Awareness Give2myVBF Appeal
Boulton Family’s Vascular Awareness for the Future
April 21 Muscarella Family’s Italian Night Dinner and Dance in Bronx
Dr. Linda talks about DOA on Ehealthradio network on Podbean
Story by Olivia Grant, Miss Thousand Islands 2017 @missti2017 (259 likes)
Pennsylvania
Mannix Family created Give2myVBF page for daughter’s birthday
May 20 Andria Downey’s Olivia’s Bingo for Birthmarks in Bensalem
Texas
May 20 Annual Birthmark Bash of North Texas Family Fun Day in Dallas
Washington
April 15 – 30 Corinne Barinaga’s Crystals for a Cause
Canada
Ashley Dao reads Buddy Booby’s Birthmark book in Alberta
Lyndsey Berlett reads Buddy Booby Birthmark book in Ontario
Norway
July 8 Luke Kellgran runs for VBF in the the Hornindal Rundt
United Kingdom
Buddy Booby’s Birthmark Read-Alongs in Wakefield and Southhampton
Biking for Alonso from London to Paris in 24 hours!
Birthmark Support Group posts on Twitter
Mexico
Castellanos family made the cutest video: Alonso tells 5 things about his PWS”
Escobar de Gomez family posts their #PutOnYourBirthmark photo
Lebanon
Assi Family shares the story and photos of their book Respect and Accept

 

PWS2015
Baby Reagan’s Bravelets campaign raised over $620

Check back as we add more events
See past events for more ideas
Worldwide
– Put On Your Birthmark Campaign #askaccept #VBFawareness #birthmark
Ask/Accept Anti-Bullying Video Campaign – Send your video clip to crystal.vbf@gmail.com
Alabama
– Deer Valley Elementary class – celebrates post-laser treatment with a ‘Dots Day’
California
– The Maddox Family – Help Celebrate Carson’s 4th Birthday!

– Julienne Wood – speech and research paper about vascular birthmarks
– The Riley girls – Rock The Birthmark
– Danny Larios – shared photos and story from InThisSkin project
– Paige Lauren Billiot – invited over 1800 followers to join VBF’s Day of Awareness @FlawlessAffect
– Kimberly Heintzman – DermablendPro stories

– Jessica Baxter – video outlining her birthmarks

Colorado
– Jamie Miller – charity night at a restaurant
– Kiana Barber – shared daughter’s journey

Connecticut
– Sharon and Michael – appeared in VBF’s ASK/ACCEPT 1 YouTube video
Florida
– Dru DiMattia – Sponsored Team VBF at Rotary’s Annual Run – Feb. 13
– Dr. Ana Duarte – Children’s Skin Center event – May 11
Georgia
– Rebecca Cerasani – shared story on Instagram
Illinois
– Lauren Sheehan – Bravelets (Be Brave bracelets) fundraiser

– Kristin Edgar – running 1/2 marathon in honor of niece – July 17th

– Nikki Wilkins Pedigo nurses at her workplace Put On Your Birthmark
Indiana
– SweetSnaps Photography – free photo session for children affected by a birthmark
Iowa
– Anna Whipple – post story on social media and personalize a fundraiser page
Kansas
– Shana Paula – appeared in VBF’s ASK/ACCEPT 3 YouTube video
Kentucky
– The Ethington Family – Buddy Booby’s Birthmark book Read-Along
Maryland
– Paul Siegel – Shared photo on Facebook to raise awareness
Michigan
– Kimberly Chan – 5K Race – March 19 – SUCCESSFULLY RAISED $700
– Jody and John Lee – Purple Polka Dot 5K Race – August 14
– Savalle family – Shared logo on Facebook

Minnesota
– Lucy’s Kindergarten class – read Buddy Booby’s Birthmark book and wore a sticker
Missouri

– Rachel Hudson – Hadlee’s Halo Give2myVBF fundraiser page
Nevada
– Rachel Anderson – blog about being beautifully_marked
New Jersey
– Sharon Israel – Park Lane Jewelry Flash Fundraiser
– Kim Vitale – Give2myVBF Fundraising Page
– Smart Cover – logo on website

North Carolina

– Elissa Rifkin – post Day of Awareness info on social media
– Ashley Carroll – collage of friends and family who #PutOnYourBirthmark for her daughter
– Tara Loiselle-Podvojsky – Mei’s before and after story
– Angie Mann McDuffie – Visit on facebook
– Patty Titus Shropshire family – Visit on facebook
Ohio
– Andreah Forbes Shared photo on Facebook
Pennsylvania
Andria Gottsabend Olivia’s Walk for Birthmarks
Jaysa Mannix donate in honor of birthday
Texas
Martha Griffin and Angie Shank – Birthmark Bash 2016 Family Picnic – May 15th
Washington
– Carol Kowalski – promoted on social media
Canada
– Jessica Wessels – posted logo on business website and Facebook page
– Sherry Crummy – shared photos on facebook
Trinidad
– Kianna Smith – making a video to raise awareness
United Kingdom
– Birthmark Support Group – Family Fun Day – May 22
– Aisling – shared eight birthmark stories and collage on blog
– Amy Elsegood – no make up selfie
Russia
– Olga Bachuk – Put On Your Birthmark photo on Facebook
The Philippines
– The Parcia Family – expresses thanks to VBF for helping their princess
Mexico
– The Castellanos family – Did You Know…?series of facts
India
– The Kaushal family – Put On Your Birthmark and outreach to other women with vascular birthmarks
Lebanon
– The Assi family – Shared Jade’s story and Put On Your Birthmark photo
Dominican Republic
– Johanna Infante and family – Put On Your Birthmark
Australia
– Amber Dawkins – shared facts about her port wine stain
Australia
– Michelle Leane – posted story and photo of her birthmark for the first time
Indonesia
– Ratna Mulyany – daugther’s
Arizona
– Cynthia Burr – visit on Facebook

PWS2015
Baby Reagan’s Bravelets campaign raised over $345

Check back as we add more events

Alabama
· Misti Nicole – shared Guilianna’s hemangioma journey
California
· Lauri Firstenberg – Edie’s JoinMe page

· Alison & Ben Maddox – honor son’s birthday

· Crystal Hodges – posted “Making a Difference” video

· Kelly and Sam Rogers – appreciation video
· Jennie Legary – started @vbf_usa Twitter feed and askaccept Instagram posts

· Alana Kamins – sells artwork online

Colorado

· Jamie Miller – Buddy Booby Read-Along at school

Illinois

· Lauren Sheehan – Bravelets (Be Brave bracelets) fundraiser

Iowa

· Kelly Stack – Buddy Booby Read-Along at school

Kansas

· Mallory Radtke – JoinMe page

Massachusetts

· Christina Duncan – Buddy Booby Read-Along at church

Michigan

·Jo Price Photography – Buddy Boody Read-Along

Minnesota

· Lucy Wang – fundraiser at restaurant

New Jersey

· Sharon Israel – fundraiser at Alex and Ani jewelry store

New York

· Fran Muscarello – themed-dinner event

· Kyla Manny – Chasing the Cure Golf Tournament

· Joanmarie DiMirco – JoinMe page

· Dr. Gregory Levitin – career day presentation at middle school

NorthCarolina

· Stacy Greenway Wozny – daughter’s story on VBF’s #askaccept Facebook page

Ohio
·John J Brown III – JoinMe page

Pennsylvania

· Andria Gottsabend – Olivia’s Walk for Birthmarks

· Rhonda Carapella – fundraiser at Charming Charlie store

· Jaysa Mannix – donate in honor of birthday

Texas

· Kelsey Hendricks – Buddy Booby Read-Along

· Texas Children’s Hospital – Share 12 copies of Buddy Booby’s Birthmark book

Washington

· Lisa Lanza – piano performance fundraiser

Canada

· Elizabeth Poon – JoinMe Birthday Page for daughter

India

· Batool Kaushal – information table at medical camp

· Tanya Kaushal – presentation at international school

United Kingdom

· Andrew – shared his story

Trinidad and Tobago

· Kiana Smith – posted a video

VBF Board Members

  • VBF Parent Rep Natalie and Treasurer Brian Bolinger – Texas,
    October 2009 – Silent Auction and Texas Hold ‘Em –
    Annual event and largest Day of Awareness fundraiser. Their daughter
    Nicole had a hemangioma.
  • VBF Secretary/SWSC Co-Director – Tiffany Ethington and son Glen
    Ethington. Tiffany and Glen have an annual interview on noon news
    to raise awareness. Glen has Sturge-Weber syndrome/facial Port Wine
    Stain, and organized a newsletter and pen pal group for kids with
    birthmarks and their siblings/friends called “Glen’s
    Gang”. VBF Chapter Director/SWSC Co-founder Glenda Ethington
    also helped organize this annual event.
  • VBF Executive Assistant Basia Joyce – VBF Walk/Run organizer.
    Basia’s daughter Anna had a hemangioma.
  • VBF Director of Musicians with Birthmarks Jenny Legary –
    Jenny is putting on a show in NY. Jenny has port wine stain.
  • VBF Parent Rep Danielle Vlahos – Each year Danielle hosts
    a “Jeans Day” at her workplace. Danielle’s son
    Cole had a hemangioma.
  • VBF Parent Rep Lianne Chase – Team running in the VBF
    Walk/Run in NY. Lianne’s son Cody has a lymphatic malformation.
  • VBF Legal – Barbara Rothaupt – VBF Walk/Run organizer
  • VBF President Dr. Linda Shannon and daughter Christine Shannon
    – VBF Walk/Run organizer. Christine had a hemangioma on her
    lip and was the inspiration for the organization of VBF.
  • VBF Parent Rep Elysa Baron and her daughter VBF Student Rep
    Saige Cavayero – Selling VBF Kids Who Care bracelets and organizing
    a team for the VBF Walk/Run. Saige was the inspiration for the bracelets.
    She designed them as a fundraiser for the first VBF Day of Awareness.
    Glen’s Gang and the VBF Kids Who Care program used Saige’s
    original design for adult bracelets and designed a blue/white swirl
    bracelet for children. Saige had extensive facial hemangioma.

Family and Volunteer Events

  • Donna Ducker and Evan Ducker – International Event – Buddy
    Booby Read-Along – Buddy Booby is the mascot for VBF. Mother
    and son authored the “Buddy Booby’s Birthmark”
    book about a booby bird with PWS. Evan Ducker has a facial PWS
  • Lisa Burdick – Saegertown, PA Collection Box
  • Allen Stotler – Sunrise, FL – Collection Box and VBF Starter
    Kits
  • Arlin Diaz – Hopelawn, NJ – Collection Box
  • Mike Jackson – Newton Centre, MA – VBF Starter kits
  • Rita Jones – Grand Saline, TX – Collection Box
  • Kate Steele – Dekalb, IL – Collection Box and VBF
    informational materials – In Honor of Aliyah Steele and VBF
  • Karenina – Advance, NC – in Honor of daughter, Juliana
    Grubb – VBF informational materials
  • Bianca Shemper – Hattiesburg, MS – VBF Stickers
  • Kathy Wyrick – Lake City, FL – Article in local
    paper and informational pamphlets
  • Jan and Andrew Dreger – 3rd annual Awareness Day Event
    at family
    owned/operated restaurant- Campbell’s Boat House in Media, PA. Percentage
    of sales donated to VBF
  • JoAnn Campbell – Media, PA – Buddy Booby Birthmark Read
    Along to students at St. Cornelius School. JoAnn is a teacher in
    Chadds Ford, PA. Also, video montage shown to students of grandson
    Owen Dreger.
  • Rabbit Hill Nursery School – Springfield, PA – Buddy Booby
    Read Along to Owen Dreger’s Pre-school class.
  • Vanessa Beall – Aptos, CA – Collection Box –
    In honor of Lillie Nichols
  • Christine Sylvester – Milwaukee, WI – postcard and
    sticker campaign to friends and family
  • Kathleen Miller – Slingerlands, NY – Lunch and Learn,
    collection box – In honor of Camryn Shea Miller

VBF Chapter Events

  • VBF Latin America – Andrea Domingues – São Paulo, Brazil
    – Medical Lecture – Each year Andrea hosts a meeting of People
    with Hemangioma and Linphangioma Brazil. The conference is organized
    by ABRAPHEL, a Brazilian association for people with Hemangioma
    and Lynphangioma. Andrea’s daughter, Gabrielle, has Proteus
    syndrome.
  • VBF India – Santo Banerjee – Kolkata, West Bengal, India
    – Writing an article in the local newspaper. Santo’s
    son, Sumangal, has SWS.
  • VBF Poland – Ewelina Ochab – plans pending
  • Sturge-Weber Syndrome Community (SWSC) – Lexington, KY
    – Tiffany and Glen Ethington – Tiffany and Glen have an annual
    interview on noon news to raise awareness. Glen has SWS/PWS and
    organized a newsletter and pen pal group for kids with birthmarks
    and their siblings/friends called “Glen’s Gang”.
    • Glenda Ethington , SWSC – distributing informational
      pamphlets to local hospitals/doctors.