Vascular Birthmarks Foundation Forum

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flockofkellers 04-28-2005 07:45 AM

Hello everyone I am new to this forum. I am ugly and have a PWS covering most of my left cheek haha. Anyone here reside in the Southern California region?

hankbartenbach 04-28-2005 07:20 PM

Re: Newbie
Hi flockofkellers,

Welcome to the group,

I am 22 with PWS/SWS.

Nobody is ugly. It is all in the head. Looks to me do not mean much it is the person inside that counts.
I am in Colorado for now but moving back to Nebraska. What part of southern CA are you talking about? I have a friend with a PWS that lives 10 miles from Irvine. Did you know we are having a confrence there in Oct. For mor details look at the front page of this website.


flockofkellers 04-30-2005 05:29 AM

Re: Newbie
I live in Downey it's in LA county. Yes I wish the inside mattered more to everyone and was more easily perceivable and significant.

Who is your friend? I am dying to meet another PWSer.

Yeah I just learned about the conference, do you know if the first 50 families have already registered? Because I am broke.

Colorado eh? I have some family there in Boulder I was there during spring break. Zip-a-dee-doo-dah.

hankbartenbach 04-30-2005 08:05 AM

Re: Newbie

It just takes some people longer then others to grow up and to see the true you. Just give it time.

Check your email about my friend.

I am pretty sure the 50 people discount is up already. Paige one of exacitive on the board would be able to tell you. You can find her on the front page in the board section.

bummer we could have met. I live in the springs, about 70 south of Denver.


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