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toni 07-13-2003 02:36 AM

AVM fed up with the pain
I have an avm that started out on my neck and has moved into my throat after having sclorotherapy. I spent a year in bed with a hole in my throat to help me breath. I don't know how much more i can take of the pain. The doctors say it is something they cannot cure that it is a temporary fix to my problem. I don't know where to go to find someone who can fix this for good! Now i have been having alot of pain in my throat and ear and am afraid that the doctors will say the same thing not much we could do for you! Any one have any ideas please feel free to email me!


Gayle 07-27-2003 11:40 AM

Re:AVM fed up with the pain
I also have a malformation that has now invaded my throat. I have not had any treatment yet. I am scheduled to have lazer surgery in Oct. Dr. Waner of the Arkansas Childrens hospital will be my physician. I have not had any pain only mild discomfort so far. I hope that your situation improves and that you can find the help that you deserve. It is so hard to find Dr.'s that are knowledgable for our conditions. Do you feel comfortable that your Dr.'s are the right ones for you?
Keep your chin up and know that there are others out there who can sympathize with your situation. You are not alone in this...Good Luck

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