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becci5 08-03-2009 02:38 PM

daughters pws growing
hi my daughter (19 months old) has a pws on the left hand side of lower back. Although i was aware it would grow as she grows it seems to be growing faster than her rate of growth and has now started to cover her spine. Has anyone else experienaced this?; any thoughts? is this normal?

missy 08-03-2009 10:22 PM

I'm not quite sure, but others will chime in soon.

Just wanted to say "welcome!"


nickbar 08-07-2009 05:11 AM

Can you give me more details of her diagnosis of PWS? If you prefer you can email me directly at the address below. Explain what you mean by growing? Speading out or thickening? Where is she being seen for this? Any treatments to date, etc.


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