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RoseBuddyMom 07-25-2010 03:40 AM

Support in our area for 7 year old
Hi, my daughter is 7.5 years old and has a mixed venous & lymphatic malf with thrombii in her right upper thigh. She was diagnosed when she was about 2.5 years old. We have been managing her with motrin/tylenol & compression pantyhose. On Thurs we had a consult for sclerotherapy and she is really freaked out about it. I was wondering if there were any support groups or other children in our area that she could communicate with to help her deal with what she is facing. I am contemplating taking her to a child psychologist to help her cope. Her condition is mild right now compared to some of the pictures I have seen and stories that I have read. My heart goes out to these children and their families. She is very blessed in that she is mobile, active and up until now has not needed any serious intervention. I do not want her to be traumatized by her treatment especially if she will need numerous treatments. Any recommendations?

missy 07-25-2010 06:31 AM

Can you give a general idea of where you are? To be honest, I have read of few support groups that meet in person... maybe two.


RoseBuddyMom 07-25-2010 04:56 PM

oops -
Yes, I live in New York (Westchester County area), my daughter's doctors are at Columbia-Pres. Thank you.

missy 07-25-2010 07:14 PM

Call Beth Israel and ask if they have a group that meets regularly. Actually, any vascular clinic in the area might have information for you.

Good luck!!


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