Vascular Birthmarks Foundation Forum

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-   -   PWS causing abdominal pain? (

mmae123 03-08-2004 09:24 PM

PWS causing abdominal pain?
Hello - I was on here for a while.. and back...

My PWS covers 90% of my entire body! Yes, the entire body -- very, very rare indeed.

So far - I haven't had too many medical problems with it - varicose veins/hemangiomas on my face .. but nothing major.

I have been experiencing severe right abdominal pain since Sept 2003 - seen several doctors (G.I. / Urologist / etc) -- we've done every test imaginable to man and keep finding nothing -- and now we are starting to wonder if the PWS is possibly growing on the inside and bleeding causing the abdominal pain.

Anyone ever had this or heard of it before? I know when I was born in 1973 - the doctors told my parents that the PWS birthmark could actually grow ..???

Anyway -- let me know, Thanks, Melissa ???

Lise 03-08-2004 11:28 PM

Re:PWS causing abdominal pain?
I hope your port wine stain is not growing internally. I'm afraid no one in this forum will be able to share any information on this with you. There is a great Web site about port wine stains, it offers lots of resources and a well informed and supportive group. It is (listed in the support groups on this site). Do you know it?

I wish I could help you more!


clairesmum 03-09-2004 05:29 AM

Re:PWS causing abdominal pain?

I am also on the website email list. It is great and there are a lot of people out there who may be able to help you. Give it a go, write the same message and wait for the replies.

All the best
Catherine (claire's mum - 17mo facial b/mark)

Lisa_99 03-26-2004 04:47 AM

Re:PWS causing abdominal pain?

who are your doctors? and where?

MOM of PWS teenager...
Mississippi ~

nickbar 03-27-2004 02:12 AM

Re:PWS causing abdominal pain?
When I read the first post here...I thought...I bet Lisa could answer this question.

Glad to see you here Lisa.


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