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Ahope2011 11-19-2011 07:40 PM

Hemangioma and Treatments..
My daughter was born july 12, 2011, she is my first baby so i have never been thro this before. She was born with it on her nose at first it was a little pink spot but a few days after she was born it started turn dark red and growing like crazy. now she is 4 months old and it is the size of a golf ball, it blocks her nostrils and she has a hard time eating and sleeping because she struggles to breath. It has started to split and bleed like crazy no matter how hard we try to stop it. I had to fight to get her to see a specialist and they put her on propranonal and steroids. the steroids seem to shrink it a bit but the said they could only keep her on it for a week cause she was so small and would cause her issues. She has been on the propranonal for about a month and there has been no change at all they wont operate or do laser they just keep saying to wait for it to start working. I am frustrated and dont know where to go from her i am tired of seeing my baby in pain and i fight and fight for someone to help her and all they say is i have to wait..
i just want to know where do i go from here and how lond did it take for this medicine to start working. please help!!

missy 11-20-2011 12:38 AM

Hi and welcome!

Sorry you've had such a tough time. Where are you located? My best advice right now would be to get in touch with one of our experts at

Other parents will be in soon to give you their experiences with propanolol.

Hang in there!


spaatz1329 11-27-2011 10:12 PM

It took about 8 weeks to really start to notice a difference, but then it really changed fast. Hang in there!

nickbar 12-01-2011 01:27 AM

How are things going? Any changes. Where are you located?

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