Vascular Birthmarks Foundation Forum

Vascular Birthmarks Foundation Forum (
-   Lymphatic Malformations (also known as cystic hygroma and lymphangioma) (
-   -   LVM on left neck (

nataliegutman 10-14-2012 09:03 PM

LVM on left neck
my son is 2.5 years old, diagnose with LM at neck.
we didn't do any treatment yet and we don't have much support in israel.
maybe you can share with me your experience, i don't know how you live with that. i nervous about every time he gets sick.
maybe you can share with me what you have gone through.
many thanks

jom 11-07-2012 10:31 AM

Hi, I am a 41 year old who lives in the Uk, This is something that I still suffer with today, Now through my life this has varied, sometimes I get a mild ache, another time infections, sometimes it can be quite painfull, and other times nothing for months. I have had numerous surgery, the only thing I can honestly recomend is massage. This was given to me by A surgeon quite a few years ago, Not many doctors understand or are knowledgable about this subject, I had one doctor convince me I was seriously ill, this was not the case, most of the info on the net about this condition is correct, as no one has studied these birth defects at length, there are quite a few opinions,
Ihave not let this hinder me in any way or hold me up and to be honest has made me a stronger person. ...... jom

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