Vascular Birthmarks Foundation Forum

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Steph42984 10-30-2012 02:45 AM

Hemangiomas on brain
Hello :) My son has multiple H's all over his body(around 20), and he has several on his brain. We just found out today from a neurologist that one of the ones on his brain has already bled out some. He is being referred to a neurosurgeon, and I am freaking out a bit. From what I can gather, this is pretty rare for infants to have (he is actually 19 months now), so it's a shot in the dark that there might be someone here who has dealt with something similar. If anyone has any info, or knows anyone who has been through this, please comment, as I really would like to know what we are up against! Thank you!

smurph 11-01-2012 03:31 AM

I'm not sure where you are located, but if I were you I would email Dr. Levitin on this site to see what he says. If there's someone out there who has dealt with it, it may be him or he would know who to ask I bet. Good luck! As a mom, I am sure you are worried. I hope you get answers soon.

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