Vascular Birthmarks Foundation Forum

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heather03 04-26-2004 08:43 PM

new to the boards!
Hey everyone!

Came across this site and decided to join! Im a 19 yr old from ny and was born with a pw and currently going for treatments!

eprmo 04-26-2004 10:30 PM

Re:new to the boards!

my daughter is 14. and she is currently scheduled for surgery on her was it for you growing up with a PWS?? Where is it located?? My daughter is fine with her H., but just abit annoyed at times. Hers is located on her nose.....She started laser tx's on it when she was 11...and then another when she was 12 & 13....(only one a year because of school issues) This summer she will have her surgery in NY with Dr. Waner.


heather03 04-27-2004 02:18 AM

Re:new to the boards!

My pw is on various parts of my body but im just getting treatments on my face! I have been getting treatments for the past 13 yrs of my life. Going to different doctors but finally found good one! My school also gave me porblems when i would go for treatments because i would have to miss a week of school and have a tutor come to the house. Growing up with pw i had some problems in school with older kids but kids in my class never bothered me! And of course the stares in public places! I have been wearing makeup now since i was 14. I sometimes have my moments where it bothers me and then other times im just fine with it!

eprmo 04-28-2004 10:27 PM

Re:new to the boards!
thank you for sound very confident about yourself and your situation. That is good to hear.

I think my daughter and you have some things in common.

Thanks again,


Lisa_99 04-28-2004 10:42 PM

Re:new to the boards!

HI ya and welcome!

Addie's mom

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