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kaykay 08-25-2013 10:16 PM

I'm pretty close to applying for funding to have surgeries to remove my PWS

this has been years in the making to get to this point, disappointments and atleast one complete denial for funding

its alot of money i am applying for. I'm not gonna be surprised if its denied but it will definitely suck. I will be genuinely surprised if its granted ! probably bawl my eyes out

time will tell

kaykay 09-02-2013 09:32 PM

i have officially applied for funding to have surgery.

process takes 3 - 6 months. so. wait and see

if i am successful i will document what i can as seeing the process others went threw helped me understand better what to expect

missy 09-03-2013 02:19 PM

Oh, Kaykay! I will so be hoping and praying for you! Please let us know how things turn out.


kaykay 09-03-2013 07:33 PM

thank you. i will

thinking of setting up a page on fb. like i said before, seeing pics from others helped me know what to expect. still so little out there to find. without the internet, information is impossible

kaykay 09-04-2013 09:31 PM

if anyone is interest this is the link to my page

kaykay 12-10-2013 10:26 PM

three months and not a word yet. i hope i hear something by the end of January

missy 12-11-2013 02:26 PM

I hope you hear something soon! You did say 3 to 6 months... what a long time to have to wait!


kaykay 12-15-2013 01:15 PM

friday afternoon i got word, unofficially, i've been approved US25,000 of the 28,495.50 i need for one surgery.

kinda shocked because the procedures i'm suppose to go threw didn't happen but hell i'm taking it !

i just hope i can apply again for the second

missy 12-15-2013 04:35 PM


That is AWESOME! I'm so pleased for you!

So, when?


kaykay 01-12-2014 11:49 AM

i am hoping end of march/april if everything is in place. news just gets better and better

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