Vascular Birthmarks Foundation Forum

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beccypotter 09-30-2013 06:53 PM

New and after some advice please
My little girl has a strawberry hemangioma on the top of her, it started like a little red scratch/spot when she was about two weeks old and has grown into something the size of a pea that is starting to raise (its probably about 0.5cm at the most raised now and she is three months old). It is forming on the line of her head where the skull is not fused (the part between the interior and anterior soft spots where she has had quite a obvious gap from where the plates shifted during birth). I've taken her to health visitor who said it will get bigger and then start to shrink, there is nothing to worry about and it will go when its ready but the stuff online all seems to be really contradicting. I've waited so long for my daughter and so scared something horrible is going to happen to her and that this could be growing into her brain or cause her problems. As nice as they are the health visitor just doesn't seem to know (the only advice she has she had off line - there not medically trained like that) and my gp is useless. I could really do with any advice anyone has to offer

Could it affect her brain at all?
Where her head starts to fuse together will it affect the birthmark, or the other way around?
Could it cause any serious problems or is there anything i need to look out for?
Should i push for treatment or is my health visitor right in saying just leave it alone?

Thank you so much for anyone who reads this, especially to anyone who can help, i'm so worried about her

missy 10-02-2013 01:05 AM

Hi and welcome!

Congratulations on your daughter! I love babies.

I would have exactly the same questions. I would feel better if she were under the care of someone who knew something about vascular birthmarks.

Where are you located? Maybe we can help you find someone to consult with.


smurph 10-02-2013 03:45 AM

Hi there! It would be a good idea to see a specialist if possible. I don't have any personal experience with hemangiomas in that location, although I have definitely seen other children with hemangiomas in that spot. It's a great idea to have a doctor familiar with hemangiomas examine it and monitor the situation if that is possible for you. Do you know of any specialists you could see? I'm guessing you are not in the U.S by the sound of your email??? Let us know if we can help!

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