3 month old with lymphangioma, venous malformations, and port wine
We are dealing with slow responses to her growing lymphangiomas/ pain. We live in NC but are willing to go elsewhere to get her help. Anyone able to offer a recommendation from personal experience?
Hi and welcome!
Where in NC have you tried already? I think there is a good vascular anomalies group at Duke.
Try writing Dr. Levitin at http://birthmark.org/experts.php I know he had a practice in Greensboro at one point, so he might know who to tell you to call. Otherwise, I would try to see him, especially if you are willing to travel.
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