Vascular Birthmarks Foundation Forum

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karin6996 02-09-2014 01:00 PM

How To Prepare 5 year old for treatment

First, I want to say thanks for such an informative site and for all who have shared their stories on the forum as it has been extremely helpful to me.

My daughter is 5 years old with a PWS above her lip. We were misled by her pediatrician that it was a stork bite and would go away. So, now we are 4 years behind in getting treatment and I am really struggling with how to prepare my daughter for treatment. I don't want her to think that her face is damaged or she is diffent in any way. She has done a great job accepting herself and answering her friends questions about it. I am worried that Mommy and Daddy wanting to get her face fixed will indicate we think there is something wrong with her. This could be devastating, especially if the treatment is unsuccessful. Any suggestions from other parents who have gone through treatment with a pre-schooler would be appreciated.

kaykay 02-21-2014 01:40 AM

sorry i am not a parent but i have a large port wine stain including my lip. had no treatment

its great that she is accepting. kudos to the parents :) you did a great job there. if it is she can answer her friends questions maybe there's a very good chance she will understand that your not fixing her face but making sure that the PWS will not grow and hurt her ?

sorry i'm not great with kids but thats all i can think of. It will grow and to prevent that it needs to be treated.

again great job with her. at 5 years thats awesome

kelmel 03-08-2014 04:16 AM

Hi Karin,

I have not had to explain the reasoning behind the treatments to my son who receives them, but I have to his older brother, who is 6. I tell him we treat the birthmark to keep it from being "uncomfortable". Uncomfortable covers turning purple, having blebs, social awkwardness, etc. without having to go into it. That is more information than either of them need yo know at this age. The very simple answer is all my 6 year old needs at this point and may be all your 5 year old needs too.

Hope this helps!

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