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momof3inpa2009 04-17-2014 03:21 PM

Update / Surgery coming up/ Updated helpful blog
Well just wanted to update; after this 5 year journey our little one is having surgery in less than two weeks. You can read my updated blog here:
Please wish us luck!
I am so glad that I have kept track of everything in my blog because it not only helps me to remember things but helps others out there!

smurph 04-19-2014 01:23 AM

Thank you so much for sharing! I too love the fact that I kept a photo journal of my daughter's hemangioma. I feel like it really helped me process things, keep a record of what was going on and it has been helpful to others over the years. I wish you the best of luck on your daughter's surgery. I thought your comments on the propanolol were really interesting and certainly something to take note of and keep an eye on. Keep in touch and let us know how the surgery goes. I hope you feel great relief and peace when it is over! :)

momof3inpa2009 04-19-2014 02:38 AM

Thank you! I remember reading someplace (could have been on here years ago)
Something where someone asked if they felt propranolol was making their babies grouchy. I had noticed that with our Alexis from the start. Thanks so much for your kind words!

mshell 04-22-2014 10:02 PM

Hi, please keep us updated on lexis surgery, your blog has heen a great help to me. Sent you email from blog. Thinking of u...

momof3inpa2009 06-19-2014 07:11 PM

thank you so much! she had the surgery and all went well!!! :-)

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