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Peaches 09-28-2004 05:39 PM

AVM in hand
Hello my name is Peaches. I am a 33 year old single mother of four. In July I smashed my thumb in my car door and was put in a cast for about six weeks. On Sept 16th it was taken off my hand had been very swollen and throbbed constantly. I was diagnosed with an AVM in my left hand. The Doctors say they are very concerned at first they did an angiogram,MRI, ultrsound. They say if I substain an injury to my hand I could bleed to death. They have decided on immobilization and stress that with the extreme amount of blood flow I am at great risk for losing my fingers. I cannot work and had to go on welfare also applying for SSI which takes time. I am. very scared for me and my children. The doctors seem to be very vague in answers I would like to talk with others in my situaton. I don't have a computer so I'll checkat library. Would love addresses and contacts. Desperately Searching for Answers ???

Tigger 01-30-2005 05:03 AM

Re: AVM in hand
Hi Peaches, I understand your fear. My son has an AVM on his foot and he is 11 and they are talking amputation of part of his foot. Our doctor at Children's Hospital in Cincinnati Ohio specializes in hand and arm AVMs. She has treated adults. Her name is Jennifer Marler. She used to work in Boston and there are some specialists at Boston Childrens that also have experience with extremety AVMS. Dr. Joe Upton. Good Luck!

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