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Search: Posts Made By: missy
Forum: Port Wine Stain Help and Resources 01-29-2016, 06:50 PM
Replies: 5
Views: 6
Posted By missy
I did hear back from our board member. I'm not...

I did hear back from our board member.

I'm not sure which medi-cal plan you are on, but if you do a search on a service like zoc doc, and then call around and speak to the offices about which...
Forum: Port Wine Stain Help and Resources 01-28-2016, 04:39 PM
Replies: 5
Views: 6
Posted By missy
Hi neighbor! I'm in Long Beach, so just over the...

Hi neighbor!

I'm in Long Beach, so just over the county line! We have a board member in Los Angeles that might know what you should do. I will contact him today and let you know what he...
Forum: Port Wine Stain Help and Resources 01-20-2016, 06:01 AM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! I'm afraid I don't have...

Hi and welcome!

I'm afraid I don't have experience with that, so I can't answer your question. I just wanted to welcome you. You might ask one of our experts at https://birthmark.org/experts.php...
Forum: Adults Living with Birthmarks 01-11-2016, 02:40 PM
Replies: 3
Views: 2,259
Posted By missy
Hi and welcome! What an encouraging message! ...

Hi and welcome!

What an encouraging message! Thank you!

Missy
Forum: Port Wine Stain Help and Resources 01-11-2016, 02:34 PM
Replies: 5
Views: 6
Posted By missy
Hi and welcome! Does Medi-Cal cover treatments? ...

Hi and welcome!

Does Medi-Cal cover treatments? Which part of California are you in? We can probably help you find someone.

Missy
Forum: Port Wine Stain Help and Resources 01-10-2016, 05:40 PM
Replies: 7
Views: 4,234
Posted By missy
Hi and welcome! I think I would start with:...

Hi and welcome!

I think I would start with: "I have a birthmark on my leg and it's really cool." I think how he reacts will tell you a lot about him.

Missy
Forum: Port Wine Stain Help and Resources 01-07-2016, 03:13 PM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! If it were me, I'd probably...

Hi and welcome!

If it were me, I'd probably consult with a physician who was well-versed in the treatment and management of PWS and get advice. It may very well never need to be treated, but in the...
Forum: Port Wine Stain Help and Resources 01-04-2016, 03:58 PM
Replies: 1
Views: 2
Posted By missy
I answered your question in the thread above...

I answered your question in the thread above before I saw this one.

Missy
Forum: Help and Resources for Hemangiomas 01-04-2016, 03:57 PM
Replies: 79
Views: 57,854
Posted By missy
Hi and welcome! Congratulations on your new...

Hi and welcome!

Congratulations on your new baby! What an exciting time...

They could be salmon patches .. what do the borders look like? Have you consulted another physician? Can you post a...
Forum: Adults Living with Birthmarks 12-14-2015, 04:38 AM
Replies: 173
Views: 76,500
Posted By missy
Hi and welcome! We don't have much information...

Hi and welcome!

We don't have much information here about that type of birthmark, since it is not a vascular birthmark. However, you can still ask one of our experts...
Forum: Help and Resources for Hemangiomas 12-14-2015, 04:36 AM
Replies: 2
Views: 3
Posted By missy
Hi and welcome! Where are you located? I know...

Hi and welcome!

Where are you located? I know we can find someone to help you. Although, sometimes monitoring the birthmark is perfectly appropriate, I think you would feel better if you had...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 12-07-2015, 01:56 PM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! Please write to Dr Linda via...

Hi and welcome!

Please write to Dr Linda via http://birthmark.org/experts.php. I think she could help you.


Missy
Forum: CMTC 10-12-2015, 07:13 AM
Replies: 3
Views: 4
Posted By missy
It sounds like everyone is doing so well and I'm...

It sounds like everyone is doing so well and I'm so pleased to know that. I honestly expected no less.... I knew you were intelligent and resourceful the first time you wrote something here. You've...
Forum: CMTC 10-10-2015, 08:24 AM
Replies: 3
Views: 4
Posted By missy
Wow! How are you? I'm so happy to see...

Wow! How are you? I'm so happy to see you!

Glad to hear the good news on Becca. She sounds like she has been working very hard.

My older child had significant difficulties with handwriting. He...
Forum: Port Wine Stain Help and Resources 09-11-2015, 04:14 AM
Replies: 2
Views: 3
Posted By missy
Let me also say that early intervention is best. ...

Let me also say that early intervention is best. As people with port wine stains age, the birthmark can become cobbled and develop blebs. These can become painful or bleed and they are harder to...
Forum: Port Wine Stain Help and Resources 09-11-2015, 04:09 AM
Replies: 2
Views: 3
Posted By missy
Hi and welcome! Your best answer would come from...

Hi and welcome!

Your best answer would come from Dr Nelson, one of our experts. Http://birthmarks.org/experts.php

Each birthmark is unique and individual. My advice would be to find a physician...
Forum: Port Wine Stain Help and Resources 09-08-2015, 02:40 PM
Replies: 5
Views: 6
Posted By missy
What wonderful news! I shall take your picture...

What wonderful news! I shall take your picture at the conference, if you'll allow me to.

What great family and friends you must have, and good for you for thinking of a solution so quickly.

I...
Forum: Port Wine Stain Help and Resources 08-30-2015, 07:31 AM
Replies: 5
Views: 6
Posted By missy
Thank you for your very kind words. I don't...

Thank you for your very kind words. I don't often miss messages, but it's been known to happen.

I'm so glad that VBF has been able to restore some of your hope. I know you're frustrated with your...
Forum: Help and Resources for Hemangiomas 08-28-2015, 05:19 AM
Replies: 2
Views: 3
Posted By missy
Hi and welcome, What would be the ramifications...

Hi and welcome,

What would be the ramifications of waiting? Would the treatment be as effective when she's older?

Shannon said it well with "depends on what your wishes are and how quickly you...
Forum: Port Wine Stain Help and Resources 08-28-2015, 05:15 AM
Replies: 5
Views: 6
Posted By missy
Hi and welcome! I've sent your message to Dr....

Hi and welcome!

I've sent your message to Dr. Linda, but for a faster response, you can email her directly at hvbf@aol.com

I'm afraid I cannot find a message from you anywhere through VBF. It's...
Forum: Help and Resources for Hemangiomas 08-01-2015, 05:54 AM
Replies: 5
Views: 6
Posted By missy
Well, welcome back. Good to see you again ......

Well, welcome back. Good to see you again ... wish the circumstances were better.

You need to ask one of our docs: http://birthmark.org/experts.php You need a solid diagnosis, I would...
Forum: Help and Resources for Hemangiomas 07-09-2015, 05:25 AM
Replies: 5
Views: 6
Posted By missy
I was wondering what happened? You guys were on...

I was wondering what happened? You guys were on my mind.

Missy
Forum: Port Wine Stain Help and Resources 07-03-2015, 07:08 AM
Replies: 2
Views: 3
Posted By missy
Hi and welcome! http://birthmark.org/node/352. ...

Hi and welcome!

http://birthmark.org/node/352. This is what we have right now on that topic.

Good luck!

Missy
Forum: Help and Resources for Hemangiomas 06-27-2015, 05:38 PM
Replies: 5
Views: 6
Posted By missy
Frankly, I'm always amazed and humbled at the...

Frankly, I'm always amazed and humbled at the time and attention given to this by the physicians.

Ask the Expert is free. After you submit your question, it will give you a prompt to make a...
Forum: Help and Resources for Hemangiomas 06-27-2015, 05:34 PM
Replies: 5
Views: 6
Posted By missy
Yes, this is why I didn't want you to go to the...

Yes, this is why I didn't want you to go to the wikipedia page! It's alarming.

Rather than a neurological specialist, right now you need a solid diagnosis. We used to have a listing for Dr. Lord...
Showing results 1 to 25 of 500

 
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