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Search: Posts Made By: smurph
Forum: Help and Resources for Hemangiomas 02-08-2016, 04:31 AM
Replies: 4
Views: 5
Posted By smurph
Hi! For some reason, the link won't work for...

Hi! For some reason, the link won't work for me..if you want you can friend me on facebook: Shannon Murphy Hohenadel I would suggest emailing Dr. Levitin (go to the Ask the Expert link above.)...
Forum: Help and Resources for Hemangiomas 02-07-2016, 03:03 AM
Replies: 4
Views: 5
Posted By smurph
Oh no! I'm so sorry. I know that propanolol is...

Oh no! I'm so sorry. I know that propanolol is used nowadays, but when my daughter was born with an upper lip hemantioma (that went up and into her nose) it was not an option. She went on...
Forum: Help and Resources for Hemangiomas 02-03-2016, 01:48 AM
Replies: 2
Views: 3
Posted By smurph
Hi there! I would recommend sending an email to...

Hi there! I would recommend sending an email to Dr. Levitin (click on the above link to Ask the Experts.) If you can send a photo, that would be very helpful and he can give you his thoughts. Let...
Forum: Help and Resources for Hemangiomas 12-15-2015, 04:34 AM
Replies: 2
Views: 3
Posted By smurph
Hi there! You are definitely at a difficult stage...

Hi there! You are definitely at a difficult stage because it is so hard not knowing what is going to happen. It is easy to imagine all of the possibilities and think the worst. I have been there...
Forum: Help and Resources for Hemangiomas 11-18-2015, 04:55 AM
Replies: 2
Views: 3
Posted By smurph
I am not a doctor, but I would say no. Infantile...

I am not a doctor, but I would say no. Infantile hemangiomas do not develop at age 10, but it is probably some sort of other vascular lesion. I would try someone who specializes in hemangiomas or...
Forum: Help and Resources for Hemangiomas 08-28-2015, 02:09 AM
Replies: 2
Views: 3
Posted By smurph
HI there! It can take quite a while for the...

HI there! It can take quite a while for the redness to go away on its own...it is a slow process but it does usually happen!

My daughter had a hemangioma on her upper lip and the skin underneath...
Forum: Help and Resources for Hemangiomas 08-01-2015, 07:34 PM
Replies: 5
Views: 6
Posted By smurph
Hi there...so sorry you are having to worry about...

Hi there...so sorry you are having to worry about this again. :( I'm wondering...you said it was stable for years....did it ever involute at all? Did it fade at all over these past 6 years or...
Forum: Help and Resources for Hemangiomas 07-13-2015, 05:51 AM
Replies: 79
Views: 57,854
Posted By smurph
Hi there! I'm not a doctor so I cannot say for...

Hi there! I'm not a doctor so I cannot say for sure, but I'm pretty sure these are supposed to fade over time. I bet there are probably some doctors who would offer laser treatment and I've heard it...
Forum: Help and Resources for Hemangiomas 06-27-2015, 05:13 AM
Replies: 5
Views: 6
Posted By smurph
It is free :) Dr. Levitin would probably be the...

It is free :) Dr. Levitin would probably be the one to ask.
Shannon
Forum: Help and Resources for Hemangiomas 06-20-2015, 03:43 AM
Replies: 9
Views: 10
Posted By smurph
Bummer- I will be there on the 9th. Good luck! I...

Bummer- I will be there on the 9th. Good luck! I will be thinking of you. Keep us posted!
Shannon
Forum: Help and Resources for Hemangiomas 06-19-2015, 03:55 AM
Replies: 9
Views: 10
Posted By smurph
Yes, Dr. Mulliken did it. Let me know how things...

Yes, Dr. Mulliken did it. Let me know how things go. When is the surgery again? I am supposed to be bringing my mom to Mass General for her chemo soon...maybe I will be there on the same...
Forum: Help and Resources for Hemangiomas 06-18-2015, 03:16 AM
Replies: 9
Views: 10
Posted By smurph
Hi! Actually, my daughter's surgery was done at...

Hi! Actually, my daughter's surgery was done at Children's in Boston! She was 5 at the time though. Her doctor recommended it at that point for her particular situation. We were very happy with the...
Forum: Help and Resources for Hemangiomas 06-17-2015, 05:16 AM
Replies: 9
Views: 10
Posted By smurph
Also, my daughter's surgery was at a Children's...

Also, my daughter's surgery was at a Children's Hospital. I was able to go into the OR with her and be there with her until she was asleep. The nurses were awesome and explained the whole thing. You...
Forum: Help and Resources for Hemangiomas 06-17-2015, 05:13 AM
Replies: 9
Views: 10
Posted By smurph
Hi there! I just wanted to let you know that I...

Hi there! I just wanted to let you know that I was also very nervous heading into my daughter's surgery...especially because of the anesthesia. We always wonder if we are doing the "right" thing....
Forum: Help and Resources for Hemangiomas 06-08-2015, 02:35 AM
Replies: 2
Views: 3
Posted By smurph
Hi there! Have you been to see a specialist? It...

Hi there! Have you been to see a specialist? It might be a good idea for them to take a look at the one right near her eye and monitor it at the very least. They can also give you some information...
Forum: Help and Resources for Hemangiomas 06-03-2015, 02:46 AM
Replies: 1
Views: 2
Posted By smurph
Hi there! Welcome! 3 of my daughters had...

Hi there!
Welcome! 3 of my daughters had hemagiomas not in the same location but I would say the most growth happened by 6 months in all three of them. One of them it's a little tricky to say...
Forum: Help and Resources for Hemangiomas 05-24-2015, 04:21 AM
Replies: 5
Views: 6
Posted By smurph
Lucia, I have never heard of the use of that...

Lucia,
I have never heard of the use of that medication for hemangiomas. I will look into it.
Shannon
Forum: Help and Resources for Hemangiomas 05-24-2015, 04:18 AM
Replies: 5
Views: 6
Posted By smurph
Hi Sonia, I wanted to mention that my daughter...

Hi Sonia,
I wanted to mention that my daughter had a hemangioma on her hand too and it got lacy around that age as well. It takes a while to fade but amazingly it did fade on its own. I am curious...
Forum: Help and Resources for Hemangiomas 05-06-2015, 03:38 AM
Replies: 8
Views: 4,627
Posted By smurph
Hi there! I know this original post was from a...

Hi there! I know this original post was from a few years ago but I wanted to let you (Yazilos) know that my daughter had a very similar hemangioma on her hand and wrist and it totally went away on...
Forum: Help and Resources for Hemangiomas 04-23-2015, 01:52 AM
Replies: 1
Views: 2
Posted By smurph
Wow! That is so great! Thanks for sharing. :) If...

Wow! That is so great! Thanks for sharing. :) If you email Missy, she can help post pictures:

contact@birthmark.org

Shannon
Forum: Help and Resources for Hemangiomas 04-11-2015, 02:13 AM
Replies: 3
Views: 4
Posted By smurph
Great news!!!! :) Please keep us posted and let...

Great news!!!! :) Please keep us posted and let us know how everything goes! I don't have any advice about travelling to NY with a toddler. I do have some pre-surgery advice. In the weeks leading...
Forum: Help and Resources for Hemangiomas 03-26-2015, 03:56 AM
Replies: 18
Views: 617
Posted By smurph
Great news! Thanks for letting us know how it...

Great news! Thanks for letting us know how it was going!
Shannon
Forum: Help and Resources for Hemangiomas 03-06-2015, 01:39 AM
Replies: 7
Views: 8
Posted By smurph
That makes sense...we did Faith's surgery right...

That makes sense...we did Faith's surgery right before Kindergarten too. Good luck! Let us know how everything goes!
Shannon
Forum: Help and Resources for Hemangiomas 03-05-2015, 03:27 AM
Replies: 7
Views: 8
Posted By smurph
It's hard to say- Faith's was mostly done because...

It's hard to say- Faith's was mostly done because of the ulceration scar she had and so her lip was uneven with like a "divot" So I think the surgeon basically removed the scar tissue and that made...
Forum: Help and Resources for Hemangiomas 03-04-2015, 04:19 AM
Replies: 7
Views: 8
Posted By smurph
I just wanted to let you know that my daughter...

I just wanted to let you know that my daughter also had a debulking surgery for her upper lip hemangioma. I expected to see the results right away and I remember feeling really worried about 2 weeks...
Showing results 1 to 25 of 459

 
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