Vascular Birthmarks Foundation Forum - View Single Post - port wine and k-t syndrome
View Single Post
Old 10-21-2006, 12:55 AM
hankbartenbach hankbartenbach is offline
Senior Member
Join Date: Oct 2002
Location: Nebraska
Posts: 533

Hi Ombry,

First of all welcome to the group.

I am a 24 year old with facial PWS with SWS.

Being that their is not a doctor in the resource section of this group, I would recommend going to the Europe chapter of this website they might have or be able to direct you to a doctor in your area or some where that is driving distance.

So do you have SWS with your KT and PWS? If you have not been dignosed with it, once you find a doctor I would have them give you an MRI with and without contrast. That is the only way that I know of to correctly diagnose your condition, and find out if it could be internal.

Also, if you want to talk to others with PWS like us and is another branch of this group, go to
There are some people that have full body PWS that are on that group.

I really hope this helps.

Reply With Quote