Vascular Birthmarks Foundation Forum - View Single Post - Research study results available
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Old 01-03-2007, 05:57 PM
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This project sounds very interesting, I wish I would have known about VBF at the time of the survey. I am the proud mom of an almost 3 year old little boy with extensive PWS, and I have searched for a support group of some sort (anyone who has been there) since mason's birth. It is a sad thing that information is so hard to find on this subject-- it seems that each affected family has a multitude of questions and trouble finding the answers...keep up the good work!
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