I am sorry to hear about your medical problems you are having.
I am sure you have seen some of my posts so you already know I have a facial PWS. I to have had several laser treatment. I totally understand the ups and downs of the lasers working in some areas and not others. I had three plastic surgeries because of some areas where growing.
Have am sure you have looked into it already, but have you contacted the KT expert on the front of this website? He would be able to over his advice on the subject matter. I personally do not have KT, but I do have Sturge Weber Syndrome which has KT listed as part of SWS. I have heard of other people that have had internal birthmarks. It is a scary thought but you might want to see an adnomenal doctor just to make sure nothing is really going wrong.
Hopefully someone else with more info of KT will chime in soon.
Hope to talk to you soon.