Vascular Birthmarks Foundation Forum - View Single Post - PWS, Hemangioma or Angel Kisses
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Old 10-15-2003, 07:18 PM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054
Default Re:PWS, Hemangioma or Angel Kisses

Someone please correct me if I am wrong, but I think that if it is fading it is probably a hemangioma. Strange though that you say it has no tecture to it...flat like a pws. I too have had doctors (not ones we are seeing) think my son has pws when it is clearly a huge hemangioma. When it first started to appear it looked like a pws because it was flat and uniform color. Our ped. was sure it wasn't a pws and that it was a h. and after seeing a specialist...we were told it was in fact a hemangioma. It really did not take long (two weeks) to grow out of control and very much did not respemble a pws anymore. It might be a good idea to post a picture of your son on msn. site

Someone might be able to tell better by pictures? But, I think you are doing the right thing...continue to see specialists until you get an answer you can trust.

Good luck and let us know how the Nov. appt. goes.

Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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