Vascular Birthmarks Foundation Forum - View Single Post - Eyelid H
Thread: Eyelid H
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Old 12-18-2007, 09:18 PM
lo1 lo1 is offline
Join Date: Oct 2007
Location: Scotland, UK
Posts: 31

My daughter is 5 1/2 months old and she too has an eyelid H. She had an MRI scan of her brain at 8 weeks old which showed that her H is also behind her eye and slightly pressing on her eye. We have tried steroid injection and oral steroids but nothing is shifting it - apparently its an agressive one. It is a lot bigger than your childs but we are in the UK and they dont believe in doing surgery or less vision is affected more, so we have to 'wait and see'.

Hope you have luck at the DR's.

Lo x
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