Vascular Birthmarks Foundation Forum - View Single Post - New Baby/PHACE/Necessary Tests?
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Old 02-09-2008, 04:25 AM
quinnysmom quinnysmom is offline
Junior Member
Join Date: Jul 2006
Location: sault ste marie, ontario Canada
Posts: 16

She is a DOLL! Beautiful little girl.

I just approved your membership for the PHACES group so you are good to go.

I wanted to mention to you that many of the PHACES kids were thought to have port wine stains ion the beginning because segmental hemangiomas do tend to have that appearance in the beginning. Sometimes only a CAT or MRI will tell the difference. This was the case with my son.

You will read stories of some of the children that may be upsetting but please know that most of those are extreme or severe cases. Many of our kids do have mild cases with little to no complications aside from the hemangioma and many children do not have serious hemangioma complications.

Hugs to you and your beautiful little baby.

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