Hi Catherine and Barb! I don't know if she has been screened for PHACES or not, but they did do an MRI on her and there were no more hemangiomas inside her body. I am not familiar with PHACES tho, but I expect that they may have screened her for it. She has seen surgeons, dermatologists, hematologists, pediatricians, etc..surely someone would think to test for it? Should I insist that they do it if they haven't? Thanks for writing!